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E-Education

E-Education

Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.

You can also search for more presentations on Vimeo at http://vimeo.com/a1f

This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.

We gratefully acknowledge all our speakers who volunteered their time and gave permission to record and disseminate their presentations.

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Alpha-1 Foundation Research Registry
Family Experiences & Alpha-1 Awareness
Speaker : McGee, CGC, Dawn

Dawn McGee, CGC's, Bio:plus

Dawn McGee attended Villanova University and obtained a Bachelor of Science degree in Biology and a minor in Psychology. She then went on to obtain her Master of Science degree in Genetic Counseling at Arcadia University. During her genetic counseling training, Dawn completed her thesis research on the experiences of caregivers living with a spouse diagnosed with Huntington’s disease. After graduate school, Dawn worked for two years at Presbyterian Hospital in Charlotte, North Carolina. She worked primarily as a prenatal genetic counselor; however, she also provided genetic counseling services in the cancer center and the intensive care nursery. While in Charlotte, Dawn formed a monthly support group for families with Huntington’s disease and became a board member of the North Carolina Chapter of the Huntington’s Disease Society of America. She was the Director of the Alpha-1 Association Genetic Counseling Center up until 2012.

Alpha-1 Lung and Research Update
Topics : Lung , Research

Charlie Strange, MD's, Bio:plus

Dr. Charlie Strange is a Professor of Pulmonary and Critical Care Medicine at the Medical University of South Carolina in Charleston. His interest in Alpha-1 Antitrypsin Deficiency began with participation in the National Heart Lung and Blood Institute Registry in the early 1990s. Today, he manages the Alpha-1 Foundation Research Registry that has enrolled over 3000 individuals with Alpha-1. He directs the Alpha Coded Testing Study that has provided fingerstick blood tests for Alpha-1 testing to greater than 10,000 individuals recording their feelings about testing for a genetic disease. Dr. Strange is the chair of the Medical and Scientific Advisory Board of the Alpha-1 Foundation and a frequent speaker at Alpha-1 support group. 

Alpha-1 Liver Disease
Topics : Liver

Charlie Strange, MD's, Bio:plus

Dr. Charlie Strange is a Professor of Pulmonary and Critical Care Medicine at the Medical University of South Carolina in Charleston. His interest in Alpha-1 Antitrypsin Deficiency began with participation in the National Heart Lung and Blood Institute Registry in the early 1990s. Today, he manages the Alpha-1 Foundation Research Registry that has enrolled over 3000 individuals with Alpha-1. He directs the Alpha Coded Testing Study that has provided fingerstick blood tests for Alpha-1 testing to greater than 10,000 individuals recording their feelings about testing for a genetic disease. Dr. Strange is the chair of the Medical and Scientific Advisory Board of the Alpha-1 Foundation and a frequent speaker at Alpha-1 support group. 

Exercise and Pulmonary Disease

Ashley Sisson, M.ED's, Bio:plus

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