Advocacy - Your Voice Matters

Speak up about .
You can be the difference.

Advocacy - Your Voice Matters

Access to Care
Funding for Research
Development of New Therapies
Blood Product Safety
Patient Research Registries
Alpha-1 Awareness

You can be the difference.

Patient Impact is PiZ frequency/1000 people.
Blanco, I et al. Hepat Mon 2012; 12(10 HCC): e7434

Countries With Access
Countries Without Access
Countries With Info Pending

*Click on the region above to email the region's advocacy leader


Your Voice Is Vital

You are the most powerful tool in Alpha-1 Patient Advocacy. There is no one more appropriate to tell your story to a policy maker, than you. Here’s how:

Advocacy Video


Tools for Alpha-1 Advocacy and Awareness

Patients in Policy

Dennis Pollock

Dennis Pollock led an Alpha-1 support group in Oklahoma that played a key role in the passage of the Genetic Information Nondiscrimination Act (GINA) in 2008.

Fighting for Care


The following story is by Gemma Masters of the U.K., about her daughter Evie, nicknamed "Squeezy."

Creating Awareness


Ohio House passes Alpha-1 Awareness Month bill; Alphas urged to contact Gov. Kasich, senators