Finding a cure for Alpha-1 and improving the lives of those affected

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OUR IMPACT

We’ve invested more than $97 million into Alpha‑1 research and related programs

From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.

$97M

in research funded

129

researchers funded

10X

the clinical trials within a decade

TOP STORIES

Building Friends for a Cure Training

The Alpha-1 Foundation was excited to convene a Building Friends for a Cure (BFC (Building Friends for a Cure)) Training […]

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March 27, 2024
26th Gordon L. Snider Critical Issues Workshop

Pragmatic Solutions to Clinical Trial Endpoints for Lung Diseases in AATD, and AAT Variant Nomenclature The Alpha-1 Foundation was excited […]

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March 26, 2024
Alpha-1 Foundation Among 32 Organizations in Response to CMS Draft MP3 Guidance

March 15, 2024 Dr. Meena Seshamani Director, Center for Medicare Deputy Administrator, Centers for Medicare & Medicaid Services 7500 Security […]

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March 20, 2024
Happy St. Patrick’s Day from The Alpha- 1 Foundation

On this St. Patrick’s Day, we are lucky and grateful for the outstanding and unwavering commitment of the Alpha-1 community. […]

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March 17, 2024
Join us in Boston for the 16th Annual Celtic Connection

The 16th Annual Celtic Connection will take place this weekend on Saturday, March 9th in at the Newton Marriott in Boston, […]

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March 6, 2024
February 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

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March 6, 2024
Cassidy, Warner, Klobuchar Introduce Legislation to Create Easier Access to Supplemental Oxygen for Medicare Beneficiaries

WASHINGTON – U.S. Senators Bill Cassidy, M.D. (R-LA), Mark Warner (D-VA), and Amy Klobuchar (D-MN) introduced legislation to ease access to supplemental oxygen […]

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February 29, 2024
Rare Disease Day: Reasons for Action

CSL Behring asked the leaders of patient advocacy groups – and CSL staff – to explain why rare conditions deserve […]

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February 20, 2024
Celtic Connection 2024

Traditional Irish Stick Fighting demonstration at Alpha-1 Fundraiser

Saturday, March 9, 2024 / 7:00 pm- 11:00 PM

Boston Marriott Newton, 2345 Commonwealth Avenue, Newton MA 02466 […]

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February 20, 2024
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SPOTLIGHT

Jonathan Maidment is Hiking for a Cure once again!

On March 22nd, Jonathan will begin the Arizona Trail (AZT) at the southern terminus of the 800-mile-long hike. This includes descending and hiking in and out of the Grand Canyon! The AZT is one of the US’s eleven National Scenic Trails (NST). This will be his fourth NST.

Like his Triple Crown hikes, Jonathan will be hiking for the Alpha-1 Foundation to raise funds and awareness for Alpha-1 and in honor of his grandmother, who passed away in 2006 from the same condition.

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