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2021 Virtual Alpha-1 National Conference Agenda 

by | Apr 23, 2021

Thursday, June 10th

11:00 – 11:50 am Morning Coffee Meet & Greet
12:00 – 12:30 pm Conference Kickoff
  Track 1 Track 2
12:30 – 1:10 pm Patient intro
Donna Clark
Alpha-1 101 Lung
Charlie Strange, MD
Patient intro
Peg Iverson
Telehealth
Franck Rahaghi, MD
1:10 – 1:50 pm Patient intro
Bob Webster
Alpha-1 101 Liver
Jeffrey Teckman, MD
Patient intro
Jon Hagstrom
Transplant
Marty Zamora, MD
1:50 – 2:20 pm Live Q&A
With Dr. Strange and
Dr. Teckman
Live Q&A
With Dr. Zamora and
Dr. Rahaghi
2:20 – 3:20 pm Break – Dedicated chat time with the exhibitors
3:20 – 4:00 pm

 Sponsor Presentation: AlphaNet

Keynote Presentation:
What You Want to Know About COVID-19 and Alpha-1 Patients: AlphaNet Data
Robert Sandhaus, MD, PhD, FCCP

4:00 – 4:40 pm

Sponsor Presentation: Takeda

Keynote Presentation
Stress Less with Humor and Optimism
Loretta LaRoche, Renowned Humorist, Stress Management Expert and Star of Emmy-Winning PBS Specials

4:40 – 5:40 pm Patient intro
Darlene Dartt, PhD
Innovative Alpha-1 Research Panel
Moderator: Mark Brantly, MD
Virginia Clark, MD, Jeanine D’Armiento, MD, PhD, Robert Sandhaus, MD, PhD, FCCP,
Jeffrey Teckman, MD, Nicola Brunetti-Pierri, MD
5:40 – 6:00 pm Break – Dedicated chat time with the exhibitors
6:00 – 7:00 pm All in for Alpha-1: A Celebration Fundraiser

Friday, June 11th

11:00 – 11:50 am CSL Behring Platinum Sponsor Event
12:00 – 12:40 pm

Sponsor Presentation: Grifols

Keynote Presentation:
Building Resilience – The ‘Mental Fitness’ Toolkit for Personal Resilience
Dane Jensen, CEO, Third Factor

Patient Track Scientific Track
12:45 – 1:25 PM

Patient intro
Kari Black

Managing Isolation and Mental Health During COVID-19
Rachel Norwood, PhD

Patient intro
Gordon Cadwgan

 

 

What the Alpha-1 Foundation is Doing to Work Toward a Cure
Moderator: Mark Brantly, MD
Marty Zamora, MD
Jeanine D’Armiento, MD, PhD
Mike Wells, MD

1:25 – 1:50 PM Big Picture Overview of Vaccines
Bruce Trapnell, MD
1:45 – 2:45 PM Break – Dedicated chat time with the exhibitors
2:45 – 3:20 pm

Patient intro
Lindsay Megenhardt

 

 

Alpha-1 Advocacy and Public Policy Update
Miriam O’Day and
James Romano, MPA, MBA

2:45 – 3:50 pm
Patient intro

Faron Schonfeld

Emerging Therapies

Moderator: Mark Brantly, MD

Emerging Therapies for AAT Liver Disease:  TAK-999/ARO-AAT-2002 Clinical Data Review

Javier San Martin, MD, Chief Medical Officer, Arrowhead Pharmaceuticals

Maximizing the Impact of RNAi on Medicine​

Hardean E. Achneck, MD, Vice President, Early Stage Clinical Development & Clinical Research, Dicerna Pharmaceuticals, Inc.

Innovation Driven Outcomes Focused

Mark Lappe, CEO, INHIBRx

Inhaled AAT Program Update

Naveh Tov MD, PhD, Medical Director – Respiratory, Kamada

Alvelestat oral elastase inhibitor- Progress in ongoing trials and next steps

Jackie Parkin, PhD, MB, BS, FRCP, Senior Vice President and Therapeutic Head, Mereo BioPharma Group plc

3:20 – 3:45 pm MZ / SZ Presentation
Robert Sandhaus, MD, PhD, FCCP
3:45 – 4:15 pm Live Q&A
With Dr. Norwood, Dr. Trapnell, Miriam O’Day, James Romano, and
Dr. Sandhaus
3:50 – 4:15 pm 
Live Q&A

With Dr. Brantly and company speakers
4:15 – 4:40 pm Break – Dedicated chat time with the exhibitors
4:40 – 5:30 pm Grifols Platinum Sponsor Event

Saturday, June 12th

11:00 – 11:50 am Takeda Platinum Sponsor Event
12:00 – 12:40 pm

Sponsor Presentation: Vertex

Keynote Presentation
Ensuring Continued US Biopharmaceutical Competitiveness
Stephen Ezell, VP, Global Innovation Policy, Information Technology and Innovation Foundation (ITIF)

Patient Track Parent Track
12:45 – 1:10 PM

Patient intro
Nikki Parker Hayes

Clinical Trial Participation
Monica Goldklang, MD

12:45 – 1:25 pm ET

Patient intro
Erin Carr

Managing the Care of an Alpha-1 Child
Dana Goldner, MD

1:10 – 1:45 PM

New Treatments and Medications in the Management of
Alpha-1

Michael Campos, MD

1:25 – 1:45 pm ET

Pediatric Lung Involvement in an Alpha-1 Child

Nooralam Rai, MD
1:45 – 2:15 pm Live COVID Q&A
With Dr. D’Armiento, Dr. Sandhaus, Dr. Brantly, Dr. Zamora, Dr. Trapnell
Alpha-1 Kids Live Q&A
With Dr. Goldner, Dr. Rai, and Dr. Teckman
1:45 – 2:45 pm Break – Dedicated chat time with the exhibitors
2:45 – 3:25 pm

Sponsor Presentation: CSL Behring

Keynote Presentation:
Span of Control: Identifying and Overcoming Stress, Anxiety and Burnout
Carey Lohrenz, First Female F-14 Tomcat Fighter Pilot, US Navy

3:30 – 4:00 pm Live Q&A with Experts: Ask us anything!
Mark Brantly, MD
Michael Campos, MD
Jeanine D’Armiento, MD, PhD
Monica Goldklang, MD
Dana Goldner, MD
Robert Sandhaus, MD, PhD, FCCP
4:00 – 4:15 pm Conference Closing
4:15 – 4:30 pm Break – Dedicated chat time with the exhibitors
4:30 – 5:30 pm Alpha Angels Memorial Service

Silver Sponsors

Accreditations

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