Finding a cure for Alpha-1 and improving the lives of those affected

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OUR IMPACT

We’ve invested over $100 million into Alpha‑1 research and related programs

From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.

$100M

in research funded

130

researchers funded

10X

the clinical trials within a decade

TOP STORIES

Alpha-1 Awareness Month: Week 4 Recap  

This week showcased the heart, dedication, and spirit of the Alpha-1 community as everyone raised awareness; teams and supporters walked, […]

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November 25, 2025
Alpha-1 EU Awareness Event 

A1F’s role as the global leader among the world’s Alpha-1 community was highlighted recently at an Alpha-1 Awareness Month Recognition […]

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November 25, 2025
A1F Virtual Walk – Week 3 Recap 

Week 3 brought heartfelt stories, new beginnings, and meaningful moments from teams and walkers across the United States. Each walk and […]

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November 19, 2025
Dr. Virginia Clark findings from comparison of VCTE FibroScan to Liver Biopsy 

Clark reviews findings from a 3-year longitudinal study comparing VCTE to liver biopsy for staging F2/F3 fibrosis in patients with […]

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November 18, 2025
October PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

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November 18, 2025
September PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from September PubMed Articles

November 18, 2025
August PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from August PubMed Articles

November 18, 2025
NORD Webinar: Open Enrollment Essentials for Rare Disease Families

Health insurance is changing …are you ready? Join us on Nov. 19 at 2 p.m. ET for a Zoom webinar […]

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November 13, 2025
Fazirsiran and the Future of RNA Therapy in AATD Liver Disease, With Pavel Strnad, MD

Strnad emphasizes the promise offered by RNA therapeutics in liver disease and what potential fazirsiran may hold for AATD liver […]

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November 13, 2025
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SPOTLIGHT

Alpha-1 Awareness Month & the A1F Virtual Walk

During Alpha-1 Awareness Month in November, the Alpha-1 community joins the annual A1F Virtual Walk to raise funds and awareness for Alpha-1. Though many participate to move the mission forward, others, like Team Steve led by Memory Whitlock and her family, also walk in honor of their loved ones.

“After losing Steve, my kids and I knew how important it was to continue the journey of finding a cure. For the past ten years, we have promoted our walk with the love and support of family, friends, and our community, and have been successful in raising funds to support Alpha-1 research. I encourage anyone affected by Alpha-1 to help find a cure.” – Memory Whitlock

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