WHAT IS ALPHA-1?
Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic (inherited) condition – it is passed from parents to their children through their genes. Alpha-1 may result in serious lung disease in adults and/or liver disease at any age.
TESTING FOR ALPHA-1
The Alpha-1 Foundation encourages testing for Alpha-1 among those at high risk for this genetic disorder. Anyone can ask their doctor to test them for Alpha-1 or they may choose to be tested confidentially.
TOP STORIES
Connecticut Establishes a Permanent Rare Disease Advisory Council
May 24, Hartford, CT – Yesterday, Governor Ned Lamont signed House Bill 5500 (HB 5500) into law which includes...
2022 American Thoracic Society International Conference
The American Thoracic Society International Conference annually convenes pulmonary experts from around the world to...
The Ad Hoc Group Fiscal Year 2023 Recommendation
The Alpha-1 Foundation signed on with nearly 400 organizations and institutions that signed on to the Ad Hoc Group’s...
Our Number One Goal:
Find a cure for Alpha-1.
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