HomeAbout UsContact Us
Home Support Education Advocacy Newly Diagnosed What is Alpha-1? Resources Donate Newsroom

Create Awareness(New).php


 

 

 

November is

Alpha-1 Awareness Month

 

Get ready to be active during the month of November! The Alpha-1 Association and Alpha-1 Foundation are asking the community to get involved in November to spread awareness about Alpha-1 Antitrypsin Deficiency. There are many different ways you can participate and we encourage you to at least do one thing! Listed below are some suggested ways to spread awareness:

  • Contact your local newspaper(s) re: Alpha-1 Awareness Month
  • Contact a news or health editor about Alpha-1 or a personal story
  • Interview with local TV / Radio Stations
  • Place a Public Service Announcement with your local Radio / TV
  • Share your story on YouTube
  • Write a letter to the Editor about an advocacy issue or on alpha-1 awareness
  • Speak at a Better Breathers Club or civic/service group on Alpha-1 Association
  • Post information about Alpha-1 on Facebook/Twitter
  • Write a letter about Alpha-1 to your family and friends.
  • Ask your local minister to let you share your personal story about Alpha-1
  • Ask your employer, former employer or your spouse’s employer to publish your story in their newsletter with Alpha-1 Signs and Symptoms.
  • Provide your physicians with literature about Alpha-1
  • Share information about Alpha-1 at your local community organizations

View Fast Facts on Alpha-1 and How to get Tested

View the Questions and Answers about Alpha-1

What do you want the world to know about Alpha-?

If you had an opportunity to share your story with the world, what would you tell them?  As part of Alpha-1 Awareness Month, we are looking for a brief 5-minute video about what you want people to know about Alpha-1 based on your experience.  We will post the video on the Association and Alpha-1 Foundation's website.

 

If you would like to submit a video or learn how to create one, please contact Genevieve Paul at gpaul@alpha1.org or Laura Fleming at lfleming@alphaone.org. You can use either use a digital camera or Webcam.

 

For more information and/or resources for creating awareness, please contact Genevieve Paul at gpaul@alpha1.org or 305-648-0088 ext. 14 or contact your Support Group Leader.