Online Support Resources

• Alpha-1 Association Transplant Discussion Forum

• Second Wind Lung Transplant Association

• St. Louis chapter of the Second Wind Lung Transplant Association

 

Please click here to view a list of Lung Transplant Resources

Please click here to view a list of Financial Links

Personal Stories

My Breathless Journey: by James E. Danley

Please click here to read this remarkable story

Books & Materials

The Lung Transplantation Handbook: A Guide for Patients by Karen A. Couture 

To order by phone:1-250-383-6884

To order online: http://www.trafford.com/robots/00-0169.html

 

 E-Education

The following programs are available online from the Alpha-1 Association's National Education Series and National Education Conference (please allow a few minutes for page to load):

• Preparing for a Lung Transplant

  Cesar A. Keller, M.D.

  Professor of Medicine,

  Medical Director

  Mayo Clinic

• Lung Transplant Allocation System

  Martin R. Zamora, M.D.

  Professor of Medicine,

  Medical Director,

  Lung Transplant Program,

  University of Colorado at the Denver Health Sciences Center

• .Alpha-1 Lung Transplant

  James Lee, MD

  Hospital of the University of Pennsylvania

• What You Need to Know Considering Lung Transplantation

  Alan Barker, M.D.

  Oregon Health and Science University

• Pre and Post Lung and Liver Transplant Panel

  Facilitated by Alan Barker, M.D. and

  Mark Zern, M.D.

• Medical & Surgical Options for End Stage Lung Disease
  Robert B. Love, M.D., Professor and Vice Chair, Surgical Director of Lung Transplant, Loyola University

• Surgical Management of Advanced Alpha-1 Transplant and Beyond
  Rajat Walia, M.D.

• Lung Transplantation
  Hilary Goldberg, M.D., Instructor in Medicine, Harvard Medical School
  Immediate Chair Massachusetts Consortium for Lung Transplantation

• Lung Transplant Lung Allocation Score
  Ramsey Hachem, M.D., Washington University

• Lung Transplants in Alphas
  Femi Akindipe, M.D., Assistant Professor of Medicine University of Florida

Click the following links to search speakers by topic:

• Alpha-1 Transplant
• Alpha-1 Lung Disease

 

Caringbridge offers free personalized Web pages to those receiving care.

You can use it to keep loved ones and friends up-to-date while going through a transplant