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The Alpha-1 Caregivers Virtual Support Group is dedicated to providing support, education and information for Alpha-1 caregivers.  This is accomplished by:

  • Centralizing educational and informational resources
  • Facilitating peer connections
  • Providing links to resource
  • Facilitating an online Discussion Forum
  • Conducting Telecalls with Physicians/Experts/Parents

A committee of Alpha caregivers help to identify needs and resources for this Virtual Support Group as well as recommend support and educational programs and plan periodic telecalls. Committee members inlcude:  Nancy Cropper, Carol Hosley, Barb Speers and Larry Tipper.

Join the Alpha-1 Caregivers Support Group TO receive notice of telecalls and other news pertinent to Alpha-1 caregivers.

 

Upcoming Alpha-1 Caregivers Virtual Support Group Telecalls
 

Were you unable to attend a Caregivers Virtual Support Group telecall?

This page allows you to listen to the recordings of each call to ensure that you have all the information and support you need.

Click on one of the topics below to listen:
 

November 10, 2011

Caregiving and the Holidays: From Stress to Success!

Caregivers Panel

May 24, 2011

Are your legal affairs in order? The Value of Being Legally Prepared

Speaker: Mr. John Hoefs

Administrator and CEO of Mother of Mercy Campus of Care in Albany, MN, a non-profit entity providing housing and nursing services to 200 seniors through 165 employees. He is a licensed Nursing Home Administrator and a licensed and practicing attorney.

January 27, 2011

Perspectives on Caregiving

 

For more information or to be put in contact with another Caregiver, please contact Cathey Horsak at 1-877-346-3212 or by email at:chorsak@alpha1.org

Click here for a list of Internet Resources & Links

 

E-Education

The following programs are available online from the Alpha-1 Association's National Education Conference (please allow a few minutes for page to load):

 

2010 National Education Conference

Family Awareness and Testing

Mark L. Brantly, M.D., University of Florida

Dawn McGee, MS, CGC, Alpha-1 Association

Genetic Counseling Center

Dell Witcher, Alpha-1 Association Board Member

Diego Shmuels, M.D., MSN, Manager of Program Administration, Alpha-1 Foundation

 

Helpful Hints for Caregivers in the Home

Mary Gilmartin, BSN, RRT

Impact of Alpha-1 Antitrypsin Deficiency

on Children's Lung Health

Blakeslee E. Noyes, M.D.

Professor of Pediatrics,

St. Louis University School of Medicine

How to Talk to Your Children About Alpha-1

Dawn McGee, MS, CGC

Certified Genetic Counselor

Alpha-1 Association

Genetic Counseling Center

2009 National Education Conference

Alpha-1 Liver Disease in Childhood/Liver Transplant in Children

Philip Rosenthal, M.D.

University of California

San Francisco Children's Hospital

Latest Liver Research - CliC

Ron Sokol, M.D.

The Children's Hospital of Denver

Talking to Children about Alpha-1

Dawn McGee, MS, CGC

Alpha-1 Association

Genetic Counseling Center

Helpful Hints for Caregivers

Lynn Oveson,

RN, MN, ANP

 

2008 National Education Conference

Caregiving
Symma Finn
 

2007 National Education Conference