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The Alpha-1 Caregivers Support Group is dedicated to providing support, education and information for Alpha-1 caregivers.  This is accomplished by:

  • Centralizing educational and informational resources
  • Facilitating peer connections
  • Providing links to resource
  • Facilitating an online Discussion Forum
  • Conducting Telecalls with Physicians/Experts/Parents

A committee of Alpha caregivers help to identify needs and resources for this Support Group as well as recommend support and educational programs and plan periodic telecalls. Committee members inlcude:  Nancy Cropper, Carol Hosley, Barb Speers and Larry Tipper.

To join the Alpha-1 Caregivers Support Group and receive notice of telecalls and other news pertinent to Alpha-1 caregivers, please click here.

For more information or to be put in contact with another Caregiver, please contact Cathey Horsak at 1-877-346-3212 or by email at:chorsak@alpha1.org

Click here for a list of Internet Resources & Links

 

E-Education

The following programs are available online from the Alpha-1 Association's National Education Conference (please allow a few minutes for page to load):

 

2009 National Education Conference

Alpha-1 Liver Disease in Childhood/Liver Transplant in Children

Philip Rosenthal, M.D.

University of California

San Francisco Children's Hospital

Latest Liver Research - CliC

Ron Sokol, M.D.

The Children's Hospital of Denver

Talking to Children about Alpha-1

Dawn McGee, MS, CGC

Alpha-1 Association

Genetic Counseling Center

Helpful Hints for Caregivers

Lynn Oveson,

RN, MN, ANP

 

2008 National Education Conference

Caregiving
Symma Finn
 

2007 National Education Conference