Caregivers Virtual Support Group

The Alpha-1 Caregivers Virtual Support Group is dedicated to providing support, education and information for Alpha-1 caregivers. This is accomplished by:


  • Centralizing educational and informational resources

  • Facilitating peer connections

  • Providing links to resource

  • Facilitating an online Discussion Forum

  • Conducting Telecalls with Physicians/Experts/Parents


A committee of Alpha-1 caregivers help to identify needs and resources for this Virtual Support Group as well as recommend support and educational programs and plan periodic telecalls. Committee members inlcude: Nancy Cropper, Carol Hosley, Barb Speers and Larry Tipper.



Previous Telecalls/Programs

Were you unable to attend a Caregivers Virtual Support Group telecall? This page allows you to listen to the recordings of each call to ensure that you have all the information and support you need.


Click on one of the topics below to listen:

May 6, 2014

Family Testing and Basic Genetics of Alpha-1

Speaker: Sara Wienke, MS CGC, Certified Genetic Counselor, Alpha-1 Association Genetic Counselor Program, Medical University of South Carolina

April 8, 2014

Research Registry, Current Clinical Trials & Research Update

Speaker: Charlie Strange, MD, Alpha-1 Foundation Research Registry, Medical University of South Carolina (MUSC)

November  5, 2013

Open Q & A

Speaker: Participant Participation

March 5, 2012

Family and Friends: Help or Hinder

Speaker: Sara Wienke, MS, Genetic Counselor, Alpha-1 Association Genetic Counseling Program

May 24, 2011

Are your legal affairs in order? The Value of Being Legally Prepared

Speaker: John Hoefs, Administrator and CEO of Mother of Mercy Campus of Care in Albany 

January 27, 2011

Perspectives on Caregiving


Resources for Caregivers

Preventing Caregiver Burnout