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alpha1familiesrecordings.php


Were you unable to attend an Alpha-1 Families Virtual Support Group telecall?

If so, that is okay. This page allows you to listen to the recordings of each call to ensure that you have all the information and support you need.

 

Click on one of the conference calls below to listen:

December 13, 2011

The Genetics of Alpha-1

Speaker: Dawn McGee, Genetic Counselor for the Alpha-1 Association

October 11, 2011

The Promise of Stem Cell Research and What It Means for our Children

Speaker: Darrell Kotton, MD

August 9, 2011

Feedback regarding National Conference and Plans for 2012

May 10, 2011

Question and Answer Session with Experience Parents

March 8, 2011

Pulmonary Issues Facing our Children

(Update on the Study in Sweden, Baseline Lung Tests at What Ages, etc)

Speaker: Charlie Strange, M.D.

January 11, 2011

Research Pipeline in the Next 5-10 Years

Speaker: Dr. Jeffrey Teckman

Note: If you participated in this call and are interested in enrolling your Alpha-1 liver affected child (or the sibling of a liver affected child) in the research study Dr. Teckman discussed, please click here to find the center nearest you. The child or sibling must be between 6 months old and 25 years old.

August 25, 2010

Upcoming Liver Research and Participation in Clinical Trials

Speaker: John Walsh, Alpha-1 Foundation

April 27, 2010

Alpha-1 Families Telecall - Discussion and Question & Answer

To request more information about Alpha-1 Families or to request a peer connection please contact:

Cathey Horsak

1-877-346-3212

horsak@alpha1.org

 

Please click here to view a list of:

Online Support Resources

Pediatric Liver Resources

Financial Resources

Research Programs