Alpha-1 Association

The Alpha-1 Families Virtual Support Group is dedicated to providing support, education and information for Alpha-1 families. This is accomplished by:

Centralizing educational and informational resources on this webpage

Facilitating Peer Connections

Providing information and resource links

Facilitating an online Discussion Forum

Conducting Telecalls with Physicians/Experts/Parents

A committee of Alpha parents help to identify needs for this Group and engage in planning for support and educational telecalls and programs at the Alpha-1 Association National Education Conference. Members are: Jen Bauernfeind, Mark Rabush, Sarah Johnson, Lora Shelton and Leah and Brad Zelk.

You can join the Alpha-1 Families Support Group and receive notice of telecalls and notifications when additional resources are listed on this site.

To listen to previous telecalls, click here.

To request more information about Alpha-1 Families or to request a peer connection please contact:

Cathey Horsak

1-877-346-3212

horsak@alpha1.org

Please click here to view a list of:

Online Support Resources

Pediatric Liver Resources

Financial Resources

Research Programs

E-Education

The following programs are available online from the Alpha-1 Association's National Education Conference (please allow a few minutes for page to load):

2010 National Education Conference

Family Awareness and Testing

Mark L. Brantly, M.D., University of Florida

Dawn McGee, MS, CGC, Alpha-1 Association Genetic Counseling Center

Dell Witcher, Alpha-1 Association Board Member

Diego Shmuels, M.D., MSN, Manager of Program Administration, Alpha-1 Foundation

Taking a Family History

Dawn McGee, MS, CGC

Certified Genetic Counselor

Alpha-1 Association

Genetic Counseling Center

Helpful Hints for Caregivers in the Home