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alpha1families(New).php
The Alpha-1 Families Virtual Support Group is dedicated to providing support, education and information for Alpha-1 families. This is accomplished by:
A committee of Alpha parents help to identify needs for this Group and engage in planning for support and educational telecalls and programs at the Alpha-1 Association National Education Conference. Members are: Jen Bauernfeind, Mark Rabush, Sarah Johnson, Lora Shelton and Leah and Brad Zelk.
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You can join the Alpha-1 Families Virtual Support Group to receive notices about upcoming telecalls and notifications when additional resources are listed on this site. |
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Upcoming Alpha-1 Families Virtual Support Group Telecalls
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October 11, 2011
The Promise of Stem Cell Research and What It Means for our Children
Speaker: Darrell Kotton, MD
December 13, 2011
The Genetics of Alpha-1
Speaker: Dawn McGee, Genetic Counselor for the Alpha-1 Association |
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To listen to previous telecalls, please click here. |
To request more information about Alpha-1 Families or to request a peer connection please contact Cathey Horsak, Director of Community Programs & Outreach, at 1-877-346-3212 or horsak@alpha1.org
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Please click on one of the links below to to view a list of:
Online Support Resources
Pediatric Liver Resources
Financial Resources
Research Programs
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E-Education
The following programs are available online from the Alpha-1 Association's National Education Conference (please allow a few minutes for page to load):
2010 National Education Conference
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Family Awareness and Testing
Mark L. Brantly, M.D., University of Florida
Dawn McGee, MS, CGC, Alpha-1 Association Genetic Counseling Center
Dell Witcher, Alpha-1 Association Board Member
Diego Shmuels, M.D., MSN, Manager of Program Administration, Alpha-1 Foundation
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Taking a Family History
Dawn McGee, MS, CGC
Certified Genetic Counselor
Alpha-1 Association
Genetic Counseling Center
Helpful Hints for Caregivers in the Home
Mary Gilmartin, BSN, RRT
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Impact of Alpha-1 Antitrypsin Deficiency
on Children's Lung Health
Blakeslee E. Noyes, M.D.
Professor of Pediatrics,
St. Louis University School of Medicine |
How to Talk to Your Children About Alpha-1
Dawn McGee, MS, CGC
Certified Genetic Counselor
Alpha-1 Association
Genetic Counseling Center |
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