Alpha-1 Association

The Alpha-1 Caregivers Support Group is dedicated to providing support, education and information for Alpha-1 caregivers. 

AARP
The official Web site of AARP, a membership organization dedicated to enhancing the experience of aging through advocacy, information and services.

Alpha-1 CARE

An email list for caregivers to meet to find support, and share ideas and needs with other caregivers who understand. This group was started primarily for caregivers of Alpha-1 patients, but is open to all caregivers.

Administration on Aging
The Administration on Aging is a valuable resource for information on aging, providing information on local services for older Americans.

AgeNet Eldercare Network
Find Problem Solving Eldercare Products, locate organizations and services and use caregiver tools.

CareGivers-USA
CareGivers-USA is a nationwide, non-commercial directory of community-based caregiver support services -- intended to help individuals who are providing care for a family member or friend. All services are free and completely confidential.

Centers for Medicare and Medicaid Services

The Center for Medicare and Medicaid Services has a resource for caregivers whose family members or friends help people with Medicare called Ask Medicare. Caregivers can access and use Ask Medicare for information on healthcare information, services and resources. The Ask Medicare web site provides links to key partner organizations that assist caregivers and beneficiaries.

Department of Health and Human Services

The Department of Health and Human Services is responsible for public health in the United States and provides support and protection to older Americans.

Eldercare Locator
Eldercare Locator is a public service of the U.S. Administration on Aging. This site connects older Americans and their caregivers with sources of information on senior services. The service links those who need assistance with state and local area agencies on aging and community-based organization that serve older adults and their caregivers.

Family Caregiving 101

If you're caring for a loved one who is ill or disabled, this site was created for you. It's a great place to find assistance, answers, new ideas and helpful advice — for you and your loved one.

Family Caregiver Alliance
FCA is a public voice for caregivers. FCA pioneers programs in information, education, services, research and advocacy to support and sustain the important work of families nationwide who are caring for loved ones with chronic, disabling health conditions.

Medicare
The official U.S. government site for people with Medicare provides helpful information on Medicare coverage, Medicare plan choices and contacts, as well as useful health information to help you stay healthy.

Mediline 

Find more resources from a list of links from Medline Plus.

National Alliance for Caregiving (NAC)
NAC educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.

National Family Caregivers Association
Strives to educate, support, empower and advocate for caregivers.

Partnership for Prescription Assistance  

Caregivers can help patients determine which programs may be available and assist patients in answering questions and filling out forms with the online applications wizard.  This site lists programs that are helpful to people without insurance and less than 200% poverty income level. Although none of the three Alpha-1 augmentation therapies are availible in any of these programs. It would be helpful to those Alpha's not on augmentation therapy that fall within the income parameters with no insurance coverage. 

Social Security
The official Web site of Social Security provides useful benefit information on retirement, disability and survivor's benefits, and other online services.

Third Age

An all-encompassing website on health, wellness, relationships and more for thirdagers.

US Department of Health & Human Services
Access the National Family Caregiver Support Program.

Well Spouse Foundation
The Well Spouse Association is the only national organization focusing exclusively on the needs of all spouses caring for a chronically ill and/or disabled husband, wife, or partner. Let others who have "been there and done that" help you face the challenges of long-term caregiving.