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Special Initiatives


The Alpha-1 Association has aligned with a number of special initiatives along with strategic partners to accomplish its public objectives and to provide timely information on issues of importance to the Alpha-1 Community. Currently these initiatives include:

Respiratory Therapy Medicare Statute

Organ Allocation

  • Working with the Alpha-1 Foundation regarding organ allocation by petitioning to UNOS to establish a separate LAS grouping for Alphas.

Genetic Information Non-Discrimination Act

  • Providing ongoing updates on GINA legislation via the Genetic Alliance

Airline Oxygen

  • Partnering with Airline Oxygen Counsel of America (AOCA) to provide information on airline oxygen.