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Alpha-1 Antitrypsin Genetic Modifier Study (AATGM.study@channing.harvard.edu)
Participation aids Scientific Research
Alpha-1 DNA Tissue Bank (www.alphaone.ufl.edu)
Alpha-1 Foundation (www.alphaone.org)
The Alpha-1 Foundation is a not-for-profit organization headquartered in Miami dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency.
AlphaNet (www.alphanet.org)
Contracted by pharmaceutical sponsors to provide support services for clinical trials.
Alpha-1 Research Program (www.alphaone.ufl.edu)
A joint venture of the Alpha-1 Foundation and the University of Florida, the A-1 research program is constantly adding to the Alpha-1 body of knowledge.
Alpha-1 Research Registry (www.alphaoneregistry.org)
Participate in Clinical Trials
Cholestatic Liver Disease Consortium (www.rarediseasesnetwork.org/clic)
Provides support and information for children and families with rare cholestatic liver diseases.
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