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February 2012
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02/3/2012
A Profound Effect on Patient Drug Coverage
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01/18/2012
Remembering Founding Member of the Alpha-1 Association, Greg Hules
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01/9/2012
Expediting approval of “ultra-orphan” drugs
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12/27/2011
Assistance to airline passengers with disabilities
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Alpha-1-Antitrypsin Deficiency (Alpha-1) is a genetic disorder that can cause liver and lung disease in children and adults. The Alpha-1 Association is dedicated to identifying individuals affected by Alpha-1 and improving the quality of their lives through support, education, advocacy and to encourage participation in research. Join our mailing list today to receive Alpha-1 Publications and invitations to events near your area. Receive E-Advocacy News as well by becoming an Alpha-1 Advocate.

Ask-A-Doc

For the Ask-A-Doc section in the upcoming edition of the Association's Alpha-1 News quarterly newsletter, we would like to develop some questions with input from the Alpha-1 Community. To submit a question for this section in the next edition, please contact Genevieve Paul at gpaul@alpha1.org.

Scholarship Opportunity

Educational scholarships are now being accepted from Alphas and their immediate family who demonstrate financial need and who has been accepted for study at an approved institution. 

Applications must be submitted by March 15, 2012.

Click here to apply.

2012 Hope Quilt

One simple way to create awareness is to submit a square patch for the Alpha-1 Hope Quilt. This quilt will be both showcased and raffled off at the 21st Annual National Education Conference in Seattle, Washington June 8-10, 2012. Deadline for submission is April 1, 2012.

Click here for more information.

Call for Nominations

The Association's Nominating and Governance Committee is seeking nominations from its membership of candidates for election to the Board of Directors in its 2012 spring election.  Candidates are invited to complete a Nomination Package by February 10, 2012 expressing their interest.  Click here for the Nomination Package. It may also be obtained from www.alpha1.org, by email at: info@alpha1.org or by calling 1-800-521-3025 ext 16.

February 9 2012, 11:00am
Alpha Zonie Support Group Meeting

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February 9 2012, 6:00pm
Massachusetts Alpha-1 Support Group Meeting

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February 24 2012, 6:00pm
Alpha Zonie- patient dinner

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March 8 2012, 11:00am
Alpha Zonie Support Group

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March 22 2012, 11:00am
Old Pueblo Alpha-1 Support Group Meeting in Tucson, Arizon

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Site funding provided by:

The Alpha-1 Association gratefully acknowledges the 2012 Core Grant Sponsors

        

The Alpha-1 Association is a proud member of the National Health Council