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National Conference 2007

 

Saturday, June 9: Morning Sessions

8:35–9:20 am Mind Body Medicine Strategies
Keynote Speaker: Ann Webster, PhD, Director, Mind/Body Program for Cancer
Benson-Henry Institute for Mind Body Medicine, Massachusetts General Hospital

9:20–10:00 am Alpha-1 Foundation Update & Overview of Funded Research in Alpha-1
John W. Walsh, President & CEO of Alpha-1 Foundation

11:00–11:45 am The Role of the NIH Office of Rare Disorders in Orphan Drug Development and an Overview of the Alpha-1 Research Consortiums
Steve Groft, Pharm.D., Director of Office of Rare Diseases National Institute of
Health (NIH)

11:00–11:45 am Alpha-1 Lung Disease and Current Research
Mark Brantly, M.D., University of Florida, Professor of Medicine
Director of Alpha-1 Research Program & Alpha DNA & Tissue Bank

11:45 am–12:30 pm Alpha-1 Liver Disease: What is It, Who Gets It and How Do We Manage It

Robert A Sandhaus, MD, National Jewish Medical & Research Center

 

Saturday, June 9: Afternoon Break Out Sessions

2:30–3:10 pm Taking Control of Your
Diet: Eat to Breathe
Ken Samonds, Ph.D.
University of
Massachusetts		 Advances in Oxygen
Therapy
Tom Striplin
Allegany College of
Medicine		 My Name is Joe: A
Family’s Journey through
Transplantation
Richard Holloway, Ph.D.
Medical College of
Wisconsin
3:10–3:50 pm Exercise and Daily Self
Care Tips for Alphas
Tara A. Butler, CPT		 The Importance of
Pulmonary Rehab
Karen Block, CPT
Endeavor Therapy		 Resources for Alpha-1
Parents
Mark Rabush
President
Alpha-1 Kids
4:10–4:50 pm The Lung Healthy Home
Deborah Chase
Chase Communications		 InterPlay: Mind, Body, &
Spirit
Stacy Miller		 Family Genetics
Charlie Strange, M.D.
Medical University of
South Carolina

 

Sunday, June 9: General Sessions

9:30–10:15 am COPD and Concurrent Illnesses
Plaza Ballroom Neil Schachter, M.D., Mount Sinai Medical Center

10:15–10:45 am Community Outreach: What You Can Do!
Plaza Ballroom Marlene Erven, Alpha-1 Association Executive Director
Cathey Horsak, Director of Community Programs & Outreach

10:45–11:30 am Health Policy Update, Part 1/Part 2

Plaza Ballroom Miriam O’Day, Senior Director of Public Policy,
Alpha-1 Foundation/Alpha-1 Association
Diane Dorman, National Organization for Rare Disorders

11:45 am–12:15 pm Building Friends for a Cure
Plaza Ballroom Angela McBride, Director of Development, Alpha-1 Foundation

12:15–12:45 pm Experiential Workshop: Befriend the Breath
Plaza Ballroom Susanne Murtha, RYT/PYT, Yoga in the Adirondacks






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