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Friday, June 11, 2010
3:00-4:00 pm Building Friends for a Cure
Angela McBride
Alpha-1 Foundation
4:00-5:00 pm Overview of Alpha-1 Antitrypsin Deficiency - Newly Diagnosed & First Time Attendees
Chief of Pulmonary Medicine and Professor of Medicine
University of Florida
5:00-5:30 pm Alpha-1 Association Orientation - First Time Attendees
Cathey Horsak
Director of Community Programs and Outreach
5:45-6:45 pm Town Hall Meeting
Saturday, June 12: Morning Sessions
8:30-9:00 am Welcome and Opening Remarks
Executive Director
Alpha-1 Association
9:00-9:45 am Keynote Address - Genetics as Your Partner
John J. Mulvihill, M.D.
Professor of Pediatrics and Head Section of Genetics
University of Oklahoma Health Sciences Center
9:45-10:45 am Family Awareness and Testing
Mark L. Brantly, M.D., University of Florida
Dawn McGee, MS, CGC, Alpha-1 Association Genetic Counseling Center
Dell Witcher, Alpha-1 Association Board Member
Diego Shmuels, M.D., MSN, Manager of Program Administration, Alpha-1 Foundation
11:00-11:45 am Research Update
President & CEO
Alpha-1 Foundation
11:45-12:30 pm Health Care Reform
Senior Director of Public Policy
Alpha-1 Association/Alpha-1 Foundation
Saturday, June 13: Afternoon Break Out Sessions
| 2:00–2:40 pm | Infectious Diseases and Alpha-1 Camille Nelson Kotton, M.D. Clinical Director, Transplant and Immunocompromised Host Infectious Diseases Massachusetts General Hospital |
Latest Research in Alpha-1 Pediatric Liver Disease Professor of Pediatrics & Associate Professor of Pediatrics, and Biochemistry and Molecular Biology St. Louis Universtiy School of Medicine |
Heather A. Driscoll, RD, MBA Manager of Clinical Nutrition Universtiy of Colorado Hospital |
| 2:45–3:20 pm | Rare Manifestations of Alpha-1 Assistant Professor of Medicine University of Miami |
Impact of Alpha-1 Antitrypsin Deficiency on Children's Lung Health Blakeslee E. Noyes, M.D. Professor of Pediatrics, St. Louis University School of Medicine |
Helpful Hints for Caregivers in the Home Mary Gilmartin, BSN, RRT |
| 3:50–4:30 pm | Preparing for a Lung Transplant Cesar A. Keller, M.D. Professor of Medicine, Medical Director Mayo Clinic |
How to Talk to Your Children About Alpha-1 Certified Genetic Counselor Alpha-1 Association Genetic Counseling Center |
Oxygen-The Gas We Love to Hate Robert Sandhaus, M.D., Ph.D., FCCP Professor of Medicine, National Jewish Health, Medical Director, AlphaNet |
| 4:35-5:15 pm | Lung Transplant Allocation System Martin R. Zamora, M.D. Professor of Medicine, Medical Director, Lung Transplant Program, University of Colorado at the Denver Health Sciences Center |
Public Policy Update and How You Can Get Involved with Advocacy Senior Director of Public Policy Alpha-1 Association/Alpha-1 Foundation |
Certified Genetic Counselor Alpha-1 Association Genetic Counseling Center |
Sunday, June 13, 2010
9:30-10:10 am Importance of Exercise
Robert Sandhaus, M.D., Ph.D., FCCP
Professor of Medicine
National Jewish Health,
AlphaNet
10:10-10:50 am Alpha-1 Liver Disease
Professor of Pediatrics
Associate Professor of Pediatrics, and Biochemistry and Molecular Biology
St. Louis Universtiy School of Medicine
10:50-11:25 am Emotional Impact of Alpha-1
Rachel Norwood, M.D.
Psychiatrist and Assistant Professor
University of Colorado Health Science Center
11:25-12:00 pm Stem Cell Research
Darrel Kotton, M.D.
Associate Professor of Medicine
Boston University School of Medicine
