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Friday, June 5, 2009

3:00-4:00 pm Building Friends for a Cure
Angela McBride

Alpha-1 Foundation

4:00-5:00 pm Overview of Alpha-1 Antitrypsin Deficiency

Michael Krowka, M.D.

Mayo Clinic

 

Saturday, June 6: Morning Sessions

9:00-9:45 am Keynote Address

Walter M. Bortz II, M.D.

Stanford University School of Medicine

9:45-10:30 am It's Our Time in 2009

John W. Walsh

Alpha-1 Foundation

11:00-11:30 am Clinical Trials - Past, Current, and Future

Mark L. Brantly, M.D.

University of Florida

11:30-12:00 pm All About Oxygen

Brian Tiep, M.D.

City of Hope

12:00-12:30 The State of Industry

Julie Birkofer

Plasma Protein Therapeutics Association

 

Saturday, June 6: Afternoon Break Out Sessions

2:00–2:40 pm	Respiratory Infection and Alpha-1 Antitrypsin Deficiency Cristopher Czaja, M.D. MPH National Jewish Health	Alpha-1 Liver Disease in Childhood/Liver Transplant in Children Philip Rosenthal, M.D. University of California San Francisco Children's Hospital	Getting the Most Out of Your Doctor Visit Robert Fallat, M.D.
2:40–3:20 pm	Pulmonary Rehab: Learning to Live, Laugh, and Have Fun Again Mary Hart RRT, RCP, AE-C, Baylor Medical Center	Latest Liver Research - CliC Ron Sokol, M.D. The Children's Hospital of Denver	Music Making and Wellness Karl T. Bruhn, Yamaha Music, Wellness Institute
3:50–4:30 pm	What You Need to Know Considering Lung Transplantation Alan Barker, M.D. Oregon Health and Science University	Talking to Children about Alpha-1 Dawn McGee, MS, CGC Alpha-1 Association Genetic Counseling Center	The Liver is the Key- Alpha-1 Liver Disease in Adults Mark A. Zern, M.D. University of California, Davis Medical Center
4:30-5:10 pm	Pre and Post Lung and Liver Transplant Panel Facilitated by Alan Barker, M.D. and Mark Zern, M.D.	Helpful Hints for Caregivers Lynn Oveson, RN, MN, ANP	Augmentation Therapy: Does It Work? Michael Campos, M.D. University of Miami School of Medicine

 

Sunday, June 7, 2009

9:30-10:10 am Myths and Realities of Alpha-1

Robert A. (Sandy) Sandhaus, M.D., Ph.D. FCCP

National Jewish Health,

AlphaNet

10:10-11:25 am

Access and Reimburse Panel
Access and Reimbursement Panel Miriam O'Day Alpha-1 Association/Alpha-1 Foundation	Disability Bill Leach A.C.C.E.S.S. Program
Patient Assistance Programs James Romano Patient Services Inc.	Medicare Part D Anna Rich National Senior Citizens Law Center
Private Insurance Fred Walsh	Access to Care - Oxygen Miriam O'Day Alpha-1 Association/Alpha-1 Foundation