Saturday, September 20, 2008

Raleigh, NC

9:30-11:30 am Advocacy Training: Learn About Important Alpha-1 Issues on Capitol Hill
Miriam O’Day

Senior Director of Public Policy

Alpha-1 Foundation/Alpha-1 Association

11:30-12:10 pm Alpha-1 Foundation and Research Update
John Walsh

President and CEO

Alpha-1 Foundation

1:20-1:35 pm Alpha-1 Association Update
Marlene Erven

Executive Director

Alpha-1 Association

1:35-2:50 pm The Basics: Alpha-1 Lung and Alpha-1 Liver Disorder
James Donohue, M.D.

University of North Carolina

3:00-3:45 pm Clinical Trials & Research Registry Update
Charlie Strange, M.D.

Medical University of South Carolina

3:45-4:30pm Genetic Counseling
Dawn McGee

Genetic Counselor

Alpha-1 Association/Medical University of South Carolina

 

Funding for the Alpha-1 Multi-Media Library including our

E-Education Program is provided by

CSL Behring and Talecris Biotherapeutics.