Download the 2008 National Conference Program Book
Friday, June 20, 2008
4:30-5:30 pm Overview of Alpha-1 – First Time Attendees
Charlie Strange, M.D
Medical University of South Carolina
Saturday, June 21, 2008
9:00-9:30 am Keynote Address
Frank Deford
Noted author and commentator, Senior Contributing Writer
for Sports Illustrated and an Alpha who has assisted in creating
national awareness in Alpha-1.
9:30-10:00 am Working Together to Find a Cure
John W. Walsh, Alpha-1 Foundation
10:00-10:20 am State of the Cure
Adam Wanner, M.D., Alpha-1 Foundation
10:50-11:20 am Potential Breakthroughs in Alpha-1 Liver Research
Jeffrey Teckman, M.D.
Saint Louis University School of Medicine
Cardinal Glennon Children’s Medical Center
11:20-11:50 am Potential Breakthroughs in Alpha-1 Lung Research
David Lomas, M.D., Ph.D, Cambridge Institute for Medical Research
Cambridge University
11:50-12:20 pm Research Panel
Saturday, June 21: Afternoon Break Out Sessions
| 2:00–2:40 pm | Lung Transplant: Before & After Elbert Trulock III, M.D. Washington University |
Lung and Liver Tests Robert Senior, M.D. Jeffrey Teckman, M.D. |
Caregiving Symma Finn |
| 2:40–3:20 pm | Pulmonary Rehab Dottie Biggar, APRN, BC,ANP Washington University |
Health Management Lung and Liver Robert Sandhaus, M.D., Ph.D, F.C.C.P. Jeffrey Teckman, M.D. |
Emotional & Mental Impact of Alpha-1 Rachel Norwood, M.D. |
| 3:40–4:20 pm | Oxygen Therapy Jeffrey Atkinson, M.D. Washington University |
Routine Maintenance of AAT related COPD Mark Brantly, M.D. University of Florida |
Alpha-1 Parents Mark Rabush Alpha-1 Kids |
| 4:20-5:00 pm |
Lung Allocation
Score |
Liver Transplant MELD/PELD Scores Jose Derdoy, M.D. Cardinal Glennon Children’s Medical Center |
Genetics Dawn McGee, MS, CGC Alpha-1 Association Genetic Counseling, Medical University of South Carolina |
Sunday, June 22, 2008
9:45-10:15 am Advocacy Opportunities for Alphas
Miriam O’Day
Alpha-1 Association and Alpha-1 Foundation
10:45-11:30 am Strategies to Assure Access to Care for Alpha-1 Plasma
Derived Therapies
Julie Birkofer
Plasma Protein Therapeutics Association Global
11:30-12:00 pm Building Friends for a Cure: Patient Perspectives
Angela McBride, Alpha-1 Foundation
12:00-12:30 pm Alpha-1 Awareness - What you can Do
Marlene Erven and Cathey Horsak, Alpha-1 Association
