The Alpha-1 Association is a member-based, nonprofit organization founded in 1991. Its mission is to identify those affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy and to encourage participation in research.
The Association
has over 70 volunteer-led support groups around the U.S. To find a support group, please visit the pull-down menu at the top of this page to select your state or contact Cathey Horsak at 1-877-346-3212 or chorsak@alpha1.org
The Alpha-1 Association conducts a National Education Conference every year. Along with the Alpha-1 Foundation, the Alpha-1 Association cosponsors Alpha-1 Education Days and Regional Support Group Meetings throughout the U.S.
The Advocacy Program focuses on access to care; maintaining and
extending Medicare benefits; genetic non-discrimination; increasing public health
funding; traveling with supplemental oxygen; organ allocation for lung transplantation
and includes working with the Congressional COPD Caucus to further our goals.
For
more information call 1-800-521-3025 or email info@alpha1.org
The Alpha-1 Association is a 501(c)3 organization based in Miami, Florida.
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