Gordon E. Cadwgan, PhD *plus
Chair - West Palm Beach, FL
Dr. Cadwgan was diagnosed with Alpha-1 at age 48 in 1992. He and his wife, Ruth, seeking information and support for his condition, attended the first Alpha-1 Association annual meeting in Minneapolis and have missed only three since then. He received his Bachelor of Science degree in Chemistry from the University of North Carolina, Chapel Hill, in 1967 and holds a Ph.D. in Analytical Chemistry (1975) from the University of Massachusetts in Amherst, MA. He worked for Union Carbide in West Virginia and DuPont in Wilmington, DE and is now retired on disability. He is a trustee of the Board of Directors of his family’s charitable foundation. Since moving to Florida in 2000, he and his wife have been increasingly active in the Alpha-1 Foundation and Alpha-1 Association, leading a support group in West Palm Beach and running an annual walk in Jupiter, FL to raise money to find “the cure.” He is also a member of the Development Committee, the Investment Committee and Board of Directors of The Alpha-1 Project.
Kenneth Irvine +plus
Vice-Chair - Greenwich, CT
Ken Irvine is the Director of Project Management for Scotiabank’s Global Banking and Markets in the United States. The bank was named the “Global Bank of the Year” in 2012 by the Banker magazine. At Scotiabank, Irvine founded the U.S. private placement effort and helped to establish the high yield group. He has expertise in financial engineering, corporate finance, private placements, securitization and portfolio management. He brings a synthesis of investment banking perspectives through his experience at Scotiabank and prior securities firms (Managing Director at Chase Investment Banking, including head of Japan, Robert Fleming, Wertheim and Lehman Brothers). He received his BA in Economics from the University of Michigan and his MBA from Harvard Business School. He is a Chartered Financial Analyst and serves on the Board of Directors of The Alpha-1 Project. His late wife, Bettina, who died in 20014, was an Alpha and had a double lung transplant in 2004. She was a past President of the Alpha-1 Association and served on the A1A board for 11 years.
Henry Moehring *plus
Vice-Chair - Germantown, MD
Henry Moehring was diagnosed with Alpha-1 in February 1997, became an Alpha-1 Association member the same year and remained a member right through the Association’s merger with the Alpha-1 Foundation in mid-2014. He has participated in research protocols at both the National Institutes of Health and at the University of Florida. He has a Master of Business Administration degree from Johns Hopkins University and has worked as a Healthcare Administration Professional for 30 years. He is currently Executive Director at the Asbury Methodist Village, a nonprofit retirement community with 1,300+ residents and 840 employees. He served on the Association Board from 2010-2014, most recently as the Chair. He also served on the Integration Task Force that brought the Association and the Foundation together. His interest is to find the cure for Alpha 1, and to raise awareness, educate and support Alphas in the community, educate healthcare professionals and advocate at the state and national levels. He brings his education, experience and leadership to the Board to make a difference in the Alpha-1 Community.
James Quill *plus
Treasurer - Bluffton, SC
Jim Quill is the General Manager for AlphaNet and currently lives in Bluffton, South Carolina. He has an extensive history of Alpha-1 in his family. He was diagnosed with Alpha-1 in the late 1980’s and received a bilateral lung transplant in May 2006. He retired as an educator after 34 years in the public school system during which time he worked as an elementary classroom teacher, reading specialist and school principal. He graduated from Penn State University with a Bachelor’s degree in Elementary Education, has a Master’s degree in Education from Temple University, and a certificate in school administration from the College of New Jersey. He serves on the Foundation’s Educational Materials Working Group, the Budget, Program & Nominating Committee, and the Audit, Finance & Compensation Committee. He’s an active volunteer for the Gift of Life Program and attends regular Alpha 1 Support Groups, telecalls, and Education Days.
Dell Witcher *plus
Secretary - Vestavia Hill, AL
During three decades as a medical communications professional, Dell Witcher has written and produced news stories, marketing materials and videos about countless medical conditions, from the common to the uncommon. In 2008 she encountered a disease she had never heard of before, when elevated liver enzymes led to her diagnosis with Alpha-1 Antitrypsin Deficiency. Soon after her diagnosis, Dell was elected to the Alpha-1 Association Board of Directors, where she has since been involved in numerous communications projects, including serving as writer/producer of the Alpha-1 Family Awareness Video Series, the Alpha-1 Association’s 20th Anniversary Video and the Advocacy Training Video. In 2011, she received the Claude Baril Communications Award. She began her career as a radio and television news reporter, then later served as Vice President of Communications for a chain of physical rehabilitation hospitals based in the Southeast. In 1991 she established Witcher Communications, a communications consulting business specializing in the medical and legal industries. She currently resides in Vestavia Hill, Alabama, with her husband, Brunson White, and their two sons.
Martin R. Zamora, MDplus
Scientific Advisor - Aurora, CO
Dr. Zamora is Professor of Medicine, Division of Pulmonary Sciences and Critical Care Medicine, at the University of Colorado at Denver School of Medicine, Aurora, Colorado. He is also the Medical Director of Lung Transplantation at the University of Colorado at Denver Health Sciences Center. He received his medical degree from the University of Colorado School of Medicine, and did his internship and residency in Internal Medicine and Pulmonary and Critical Care Fellowship at the University of Colorado Health Sciences Center, Denver. Dr. Zamora has been a member of the American Society of Transplantation Thoracic Committee, a member of the United Network for Organ Sharing Board of Directors, the UNOS Thoracic Committee and Chaired the Lung Allocation Subcommittee and was involved in the development and implementation of the Lung Allocation System. He also served as the Chair of the Foundation’s Transplant Issues Working Group and has been involved for many years with the Foundation’s Education Days, both locally and nationally. He has been an NIH funded researcher, has been the principal investigator of multiple industry sponsored studies, and has been awarded many honors, including most recently the America’s Top Doctors Award in 2013 and the Best Doctors in America Award for 2011-2012.
Ab Rees *plus
Immediate Past Chair - Kansas City, MO
Ab Rees was diagnosed with Alpha-1 in 2001. After his diagnosis, he decided to get involved with the Alpha-1 community to help both myself and others like him.
“When I was invited to become a member of the Alpha-1 Foundation Board, I enthusiastically accepted and I gave it my all. My involvement and dedication has grown stronger due to my admiration of our accomplishments, but also because my eight-year-old grandson has been diagnosed as an Alpha, thanks to the early detection program of the Foundation. My grandson and I look forward to our continued progress toward finding the cure and serving the Alpha-1 community in the process,” he says.
Rees is a second generation railroad executive with 50 years of operating and senior management experience. He has a Bachelor of Business Administration from University of Central Arkansas and is a graduate of Harvard Business School Program of Management Development. He has been a member of 35 boards of directors and the chairman of many.
Virginia Clark, MDplus
Member - Gainesville, FL
Virginia Clark, MD serves as the Associate Program Director of the Transplant Hepatology Fellowship and as an Assistant Professor of Medicine at the University of Florida’s Division of Gastroenterology, Hepatology, and Nutrition. She has been the recipient of the Fellowship Award in Advanced Hepatology from the American Association for the Study of Liver Diseases. Her research interests are focused on Alpha-1 Antitrypsin Deficiency and Fatty Liver Disease.
Tom Corron *plus
Member - Fort Wayne, IN
Tom Corron is a 1977 graduate of Drake University in Des Moines, Iowa, and worked his entire career in leadership and management roles in a number of companies in the Property Casualty Insurance Industry. He also served as the Insurance Industry Chairperson for the Property Casualty Insurers Association of America Committee on Motorcycle Insurance. He earned his Master of Public Administration degree from Drake in May 2004, where he was awarded the Drake College of Business and Public Administration “Outstanding MPA” Award in 2003.
In 2005, after several years of respiratory infections and numerous doctor visits, he was diagnosed with Alpha-1. After moving to Fort Wayne in 2010, he organized and led the Fort Wayne Alpha-1 and COPD Support Group. He currently serves on the Support Group Leader Advisory Committee and in 2012 he received the Association’s Board of Directors’ Service Award. His passion for Alpha-1 Awareness is evident through his community involvement with the COPD Foundation, American Lung Association, Respiratory Health Association of Chicago, and American Association for Respiratory Care. He also serves on the Respiratory Therapist Advisory Board for Ivy Tech Community College, served on the planning committee of the Healthy Lung Expos in Indianapolis, and works with the Better Breathers groups in Indiana.
In 2011, he helped form a local non-profit historical preservation society in Kane County Illinois and currently serves as their President. Prior to his appointment to the Board of Directors for the Association in 2009, he volunteered with the Child Abuse Prevention Council in Des Moines, Iowa as their Public Relations Director. He also served on their Board of Directors and was a recipient of their Volunteer Service Award.
Jeanine M. D’Armiento, MD, PhDplus
Member - New York, NY
Dr. D’Armiento is Associate Professor in the Department of Medicine at Columbia University. She received both her MD and PhD in biochemistry and molecular biology from UMDNJ-Robert Wood Johnson Medical School, and then completed both her internship and residency in internal medicine at the Columbia University Medical Center. She is board certified in both Pulmonary Medicine and Internal Medicine, and has a clinical specialty in Lymphangioleiomyomatosis (LAM). She is the Director for the Center for LAM and Rare Lung Diseases at Columbia University. Her research interests are broad, from COPD to LAM to asthma to smoke injury, and her work extends from the laboratory to investigating the pulmonary status of women exposed to biomass in India and Bangladesh. Her laboratory is supported by several grants from the National Institutes of Health and an Established Investigator Award from the American Heart Association.
Sandra Douglas +plus
Member - Pittsburgh, PA
Sandra (Sandi) Douglas became involved with the Alpha-1 Association in 1993 when her daughter Julia was diagnosed with Alpha-1 shortly after being born. She has participated over the years in Michigan Support Group meetings and as a resource for “new” Alpha parents. She has a special place in her heart for Alpha-1 Kids, and is proud her daughter now volunteers at National Education Conferences to create a fun and memorable experience for families. She is passionate about ensuring that families have the information and support they need in difficult times through education, awareness, and advocacy.
She is currently the Director of MBA Programs at Katz Graduate School of Business, University of Pittsburgh. She retired from Hewlett Packard as a Senior Program Manager fin 2012. She earned her Master in Business Administration degree from Michigan State University in 2004 and has worked in the supply chain, manufacturing, and information technology industries for 30 years. She serves as Chair of the Audit, Finance and Oversight committee and the Development committee for the Board of Directors.
Elizabeth Johnson *plus
Member - Winchester, MA
Liz Johnson is currently Executive Director of Marketing and Communication at Northeastern University’s D’Amore-McKim School of Business where she develops and manages the School’s marketing and brand strategy, marketing communications, social media and public relations. She came to Northeastern in 2002 with over 15 years of experience in executive management positions in for-profit and not-for-profit organizations. Her industry experience includes publishing, software and services, research, and education. Most recently she was vice president of marketing for MeansBusiness, working with organizations such as City University of London and Duke Corporate Education. She has served as vice president of marketing at Copyright Clearance Center, at Dataware Technologies, and at Installed Technology International (a division of International Data Group). She earned an M.Ed from Northeastern University in 2007, a BS in Management from Lesley University, and is certified by Northeastern as an online instructor.
Jennifer Jopp *plus
Member - East Bethel, MN
Jennifer (Jen) Jopp was diagnosed with Alpha-1 in 2005 as a lung-affected ZZ. She has close to 20 years of Healthcare Administration Management experience and currently works for Allina Health at Abbott Northwestern Hospital in Minneapolis, MN in the Minneapolis Heart Institute cardiovascular department. She serves as a Support Group Leader for the Twin Cities Alpha-1 Support Group. She has participated in grassroots advocacy efforts on behalf of the Alpha-1 community in state and national arenas, and at both the legislative and regulatory levels.
In addition to her experience in organizing fundraising events, she has promoted advocacy and educational issues through networking efforts and writing letters to various publications. Her focus remains to help find a cure through research and to promote support, education and advocacy for the entire international Alpha-1 community.
John S. (Jack) Reid +plus
Member - Manakin, VA
Jack Reid received his Bachelor of Arts degree from Wofford College and a Master of Education degree from the University of Virginia. He has been a teacher, coach and administrator in a number of Virginia school divisions for more than 30 years. From 1990 until his retirement in January 2008, he served as a member of the Virginia House of Delegates, presiding as Chairman of the General Laws Committee and as a member of the Appropriations and Education Committees. In 2005, he was recognized as Legislative Advocate of the Year by the American Lung Association of Virginia for his successful sponsorship of the Virginia Clean Smokestacks Act. He has continued his efforts against lung disease as a member of the Virginia Leadership Board of the American Lung Association. Reid’s wife Judi was diagnosed with Alpha-1 in 2001 and served on the Board of the Alpha-1 Association.
Stephen I. Rennard, MDplus
Member - Omaha, NE
Dr. Rennard is Larson Professor of Medicine in the Pulmonary, Critical Care, Allergy and Sleep Medicine Division of the Department of Internal Medicine at the University of Nebraska Medical Center in Omaha, Nebraska, and courtesy Professor of the Department of Pathology and Microbiology. He received an AB with honors in Folklore and Mythology from Harvard University and an MD with honors from the Baylor College of Medicine, Houston, TX. He completed internal medicine training at Barnes Hospital, Washington University, St. Louis, Missouri and trained in Pulmonary Diseases at the National Institutes of Health where he remained for seven years, conducting research in the cell biology of lung disease. He joined the University of Nebraska in 1984 as Chief of Pulmonary and Critical Care, a position he retained until 1997. He previously served on the Board of Directors for the American Lung Association and the American Thoracic Society. He maintains an active program of clinical investigation in COPD and smoking cessation and a program of basic research in the mechanisms of lung tissue repair and remodeling. He is a member of the COPD Foundation Board of Directors.
Judith Simon *plus
Member - Denver, CO
Judy Simon is a ZZ Alpha, diagnosed in 2005 after her sister had been diagnosed the same year. Since her diagnosis, she has been on augmentation therapy and an active member of the Denver Alpha-1 community. For the past two years, she has been a member of the Development Committee of the Alpha-1 Foundation. A native of Virginia, she has a B.S. degree in Elementary Education, an M.A. in Special Education, and had a 12-year career as a teacher. In 1986, with her husband Ken and business partners, she opened an ice cream shop in Denver, Bonnie Brae Ice Cream. The Simons are actively involved in the business and have won local and national awards for their ice cream, which is produced daily in the store. Since her diagnosis, Bonnie Brae Ice Cream has held an annual fundraiser/awareness event to raise money for the Foundation’s research programs. Staying informed and involved with the Alpha-1 community has become a focus in her life. “I hope to be actively involved,” she says, “when we have a cure for Alpha-1.”
James K. Stoller, MD, MS (Org. Dev.)plus
Member - Cleveland, OH
Dr. Stoller is a pulmonary/critical care physician and Chairman of the Education Institute at the Cleveland Clinic in Ohio. He is a member of the Respiratory Institute at the Cleveland Clinic, where he served previously as the Vice Chairman of Medicine, Head of the Section of Respiratory Therapy, and Executive Director of Physician Leadership Development. He is the Jean Wall Bennett Professor of Medicine at the Cleveland Clinic Lerner College of Medicine of Case Western Reserve University and the Samson Global Leadership Academy Endowed Chair with a secondary appointment as Professor of Organizational Behavior in the Weatherhead School of Management at Case Western Reserve University. He received his medical degree from Yale University School of Medicine and completed an internship and residency at Peter Bent Brigham Hospital in Boston. He completed a fellowship in Pulmonary Medicine at Brigham and Women’s Hospital and in Pulmonary Medicine and Clinical Epidemiology at Yale University School of Medicine, then a fellowship in Critical Care Medicine at Massachusetts General Hospital in Boston. He later completed a Master’s Degree in Organizational Development and Analysis at the Weatherhead School of Management at Case Western Reserve University. He is Board Certified in Internal Medicine, Pulmonary Medicine, and Critical Care Medicine. He is an Associate Editor for the journal Respiratory Care and on the editorial boards of Clinical Pulmonary Medicine and of Thorax. He is a Trustee of the American Respiratory Care Foundation. He has received numerous awards, including the Egan Lecturer award, Forrest Bird M.D. Lifetime Scientific Achievement Award, and Grover Lecture at Ohio University. He has been continuously included in the “Best Doctors in America” and in “America’s Top Doctors.”