Alpha-1 Winter 2014 Cover

Alpha-1-To-One magazine

Alpha-1-To-One is filled with practical advice, personal stories and news for people touched by Alpha-1 Antitrypsin Deficiency.

The Fall 2015 issue includes the story of Ron and Karen Fraser, plus these stories:

Karen Fraser talks about life with Alpha-1, her late husband Ron Fraser, and how she got involved with the Alpha-1 Foundation. The Foundation awards record $1.8 million in research grants - find out what was funded. Trust encourages Alpha-1 community to match $300k donation. Longtime Alpha-1 public policy director Miriam O'Day, passes the torch to CRD Associates.


Life Choices

Life Choices is a toolkit that addresses the needs of Alpha-1 patients and family members related to end of life decisions. It focuses on the legal, clinical and emotional needs in a constructive, supportive and positive manner. It promotes dialogue among family members regarding sensitive issues and moves a person to a new understanding regarding end of life wishes. We gratefully acknowledge CSL Behring and Grifols for sponsoring this program.

Life Choices includes a Five Wishes Living Will which "helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It deals with all of a person's needs: medical, personal, emotional and spiritual."

The resources found in Life Choices can be downloaded below as PDFs: