Alpha-1 Winter 2014 Cover

Alpha-1-To-One magazine

Alpha-1-To-One is filled with practical advice, personal stories and news for people touched by Alpha-1 Antitrypsin Deficiency.

In the Winter 2015 issue:

  • Frank Willersinn, MD, is one of the newest Alpha-1 Foundation board members. He tells the inspiring story of his near-death experience and struggle to expand access to augmentation therapy in Europe.
  • The Alpha-1 community banded together to speak with the FDA in September. Doctors, patients, family and friends tell their stories.
  • 20 years of riding in the Escape to the Cape Autumn Bike Trek, a unique chance for patients, family and friends, doctors, researchers and industry partners to ride together for a cure.

Life Choices

Life Choices is a toolkit that addresses the needs of Alpha-1 patients and family members related to end of life decisions. It focuses on the legal, clinical and emotional needs in a constructive, supportive and positive manner. It promotes dialogue among family members regarding sensitive issues and moves a person to a new understanding regarding end of life wishes. We gratefully acknowledge CSL Behring and Grifols for sponsoring this program.

Life Choices includes a Five Wishes Living Will which "helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It deals with all of a person's needs: medical, personal, emotional and spiritual."

The resources found in Life Choices can be downloaded below as PDFs: