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Alpha-1 Winter 2014 Cover

Alpha-1-To-One magazine

Alpha-1-To-One is filled with practical advice, personal stories and news for people touched by Alpha-1 Antitrypsin Deficiency.

The Fall 2014 issue includes the story of Alpha Doc, Robert “Sandy” Sandhaus, MD, plus these stories:

The inspiring story of Alpha-1 athletes, who despite health challenges, build awareness with athletic feats; Alpha-1 Global launches its web platform to serve Alphas around the world; and the story of the Freitags, a normal family coping with the challenges of raising children with Alpha-1.

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Educational and research brochures

All of our educational and research brochures are available for download. You may download a copy of our brochures and print them if you like. To start your download, click on any of the links below.

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Life Choices

Life Choices is a toolkit that addresses the needs of Alpha-1 patients and family members related to end of life decisions. It focuses on the legal, clinical and emotional needs in a constructive, supportive and positive manner. It promotes dialogue among family members regarding sensitive issues and moves a person to a new understanding regarding end of life wishes. We gratefully acknowledge CSL Behring and Grifols for sponsoring this program.

Life Choices includes a Five Wishes Living Will which "helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It deals with all of a person's needs: medical, personal, emotional and spiritual." In order to recieve Five Wishes, you must be a member of the Alpha-1 Association. Click here to become a member.

The resources found in Life Choices can be downloaded below as PDFs: