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Foundation presents achievement awards, announces $323,000 challenge grant from Sisson Charitable Trust

Foundation presents achievement awards, announces $323,000 challenge grant from Sisson Charitable Trust
Sunday, July 26, 2015
Achievement and leadership awards and the announcement of a matching grant of $323,000 from the Sisson Charitable Trust highlighted Saturday night, the final night of the 24th annual Alpha-1 Education Conference. Mary Lyle and her family join John Walsh onstage Saturday night after his announcement of the $323,000 matching grant donation from the Harry Sisson Charitable Trust. Walsh presented...
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"Never doubt the power of one," says our longtime Woman in Washington; "Make your mark on Alpha-1 history," says Walsh

Saturday, July 25, 2015
Miriam O'Day, a consultant for the National Organization for Rare Disorders and for many years the Senior Director, Public Policy, for the Alpha-1 Foundation, gave the keynote talk Saturday morning at the 24th annual National Education Conference...
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Building Friends for a Cure honors community fundraisers; BFC program has raised more than $5 million over 10 years

Saturday, July 25, 2015
In the 20th anniversary year of the Alpha-1 Foundation, the Foundation's Building Friends for a Cure (BFC) program marked its own 10th anniversary and a total of more than $5 million raised in community fundraising events over the decade, during...
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2015 Alpha-1 National Conference opens with inspirational Appalachian Trail story, meetings with experts and session on community engagement

Friday, July 24, 2015
The 24th annual National Education Conference of the Alpha-1 community officially began Friday afternoon with a two-hour "Meet the Experts" session at which Alphas were offered the chance to ask questions about both the lung and liver diseases of...
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More than 500 attend Alpha-1 National Conference. Can't make it? Watch Saturday events live online

Tuesday, July 21, 2015
GARDEN GROVE, California – At 55, Bill Libby of San Diego, CA, thought of himself as a healthy man. There was only this stubborn chest cold that had lasted for months. His primary care doctor ordered an X-ray, just as a precaution. The...
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Americans with Disabilities Act celebrates 25th anniversary

Monday, July 20, 2015
This year on July 26, the Americans with Disabilities Act (ADA) will celebrate its 25th anniversary. Signed into law by President George H.W. Bush in 1990, the ADA both prohibits discrimination on the basis of disability and guarantees equal...
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New NIH body calculator helps you lose or gain weight

Monday, July 20, 2015
Forget the number 2,000—a new government calculator uses the latest research to spit out an exact calorie count and exercise regimen you’ll need to hit your weight loss goals. The calculator, called the Body Weight Planner, is...
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Medicare to test program that allows patients to use hospice services while still getting curative treatments

Monday, July 20, 2015
Terminally ill patients no longer will have to give up curative treatment to receive Medicare-paid hospice care, under a limited new program the CMS will start testing with 140 hospice providers as early as January. The Medicare Care Choices...
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FDA approves first COPD biomarker for use in clinical trials in "major triumph" for drug development

Monday, July 13, 2015
The U.S. Food and Drug Administration (FDA) has approved a new clinical biomarker, plasma fibrinogen, for use in clinical trials of patients with chronic obstructive pulmonary disease (COPD), the third leading cause of death in the United...
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Foundation, NORD applaud House passage of 21st Century Cures Act, increasing NIH and FDA funding

Friday, July 10, 2015
The Alpha-1 Foundation and National Organization for Rare Disorders (NORD) today applauded the U.S. House for passing the 21st Century Cures Act legislation by a margin of 344-7. Peter Saltonstall, president and CEO of NORD, called the vote "a...
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Medicare announces plans to cover end-of-life counseling by physicians

Thursday, July 9, 2015
Medicare, the federal program that insures 55 million older and disabled Americans, announced plans on Wednesday to reimburse doctors for conversations with patients about whether and how they would want to be kept alive if they became too sick to...
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Golf fundraiser honors the memory of Bettina Irvine, Alpha-1 advocate, leader

Wednesday, July 8, 2015
On a beautiful Monday in June, over 100 people attended and participated in the Bettina B. Irvine Invitational Classic – a golf fundraiser held in memory of former Alpha-1 Association chair and Alpha-1 community advocate Bettina Irvine....
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Foundation congratulates Alpha-1 pioneer researcher David Perlmutter on being named Washington University Medical School dean

Wednesday, July 8, 2015
The Alpha-1 Foundation today congratulated groundbreaking Alpha-1 researcher David Perlmutter, MD, on being named executive vice chancellor for medical affairs and dean of the Washington University School of Medicine in St. Louis, MO. Perlmutter,...
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