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Robert G. “Bob” James, World Transplant Games medalist, dies at 75

Robert G. “Bob” James, World Transplant Games medalist, dies at 75
Thursday, September 3, 2015
 A woman once told Robert G. “Bob” James that she had suffered from chronic breathing problems for 15 years, but her doctor told her it was all in her head. James steered her to his own doctor, who diagnosed her with Alpha-1 Antitrypsin Deficiency (Alpha-1), a genetic condition that can cause lung and liver disease. Although the woman died the following year, she was comforted...
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Daughter of Star Trek's "Mr. Spock" planning COPD documentary

Wednesday, September 2, 2015
Julie Nimoy, daughter of Leonard Nimoy, and her husband David Knight, are planning a documentary dedicated to the "Star Trek" actor called, "COPD: Highly Illogical -- A Special Tribute to Leonard Nimoy." Diagnosed with COPD (Chronic...
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PSI announces medical financial assistance for Alphas

Tuesday, September 1, 2015
Patient Services, Inc. (PSI), a non-profit organization that supports people living with chronic conditions, has announced the program criteria that will be in place for 2016 copay and premium assistance in  Alpha-1 Antitrypsin...
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70-year-old Alpha trains for fundraiser with oxygen on her bike rack

Tuesday, September 1, 2015
ROCKLAND, MA – It’s not even 9:30 a.m. on a summer Sunday and Alyce Yout has already put in her mileage for the day. Yout, 70, rides her road bike using oxygen and carries an oxygen supply on her rear bike rack, with tubing running to...
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Largest health insurers issued steepest price hikes, study shows

Monday, August 31, 2015
Bigger might be better, but it can also be pricier—at least when it comes to Obamacare. A new analysis found that the largest insurer in each of the states served by HealthCare.gov raised their prices in 2015 much more...
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Smartphone could monitor wheezing

Monday, August 31, 2015
A simple breath can reveal a lot about someone's health. That's why researchers are developing wearable devices that keep continuous tabs on the wearer's lungs. But while gadgetry often gets the attention, it's the algorithms behind the gadgets...
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CSL augmentation therapy Respreeza approved for Alphas in Europe

Tuesday, August 25, 2015
Respreeza, CSL Behring's augmentation therapy for Alpha-1 Antitrypsin Deficiency, has been approved for use in Europe. The approval, following a clinical trial, came Thursday from the European Medicines Agency (EMA), the European equivalent of...
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Lung transplant saves Alpha grandmother's life

Monday, August 24, 2015
Grandmother Caroline Jenkins says she will be “forever grateful” for the double lung transplant that saved her life. Jenkins, 56, said she had already planned her funeral and sorted out her will when she received a lifesaving phone...
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Parents of U.K. Alphas applaud smoking ban in cars with minors

Monday, August 24, 2015
Jemma Coad’s daughter Evie was born jaundiced, suffered a collapsed lung, and frequently had trouble breathing. She was placed on oxygen, given intravenous antibiotics and fed through a tube. Initially, her family was told to prepare for the...
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Plasma Awareness Week Announced

Wednesday, August 19, 2015
The Plasma Protein Therapeutics Association (PPTA) has announced that the third annual International Plasma Awareness Week (IPAW) will be celebrated October 11 through 17.  The event is a week-long effort to raise international awareness of...
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Teens who use e-cigarettes more likely to smoke later, study says

Wednesday, August 19, 2015
Teens who use e-cigarettes are more likely than others to later smoke conventional cigarettes and use other tobacco products, a study conducted at 10 Los Angeles high schools suggests. The study doesn’t prove that electronic cigarettes are...
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Adult Immunization Week reminds adults to get vaccinated

Wednesday, August 19, 2015
August is National Immunization Awareness Month, and this week -- August 16-22 -- has been designated Adult Immunization Week as a reminder that children are not the only ones who should be getting vaccinated.  According to the American...
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Gene therapy in mice may one day help humans see better

Saturday, August 15, 2015
Gene therapy that has restored lost vision in mice could one day help restore human vision as well, a new study suggests.  Mice who lacked the protein retGC1, which is also deficient in humans suffering Leber congenital amaurosis-1 (LCA1)...
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