Menu

Top Stories

Foundation CEO lauds "wearable technology" in empowering COPD patients

Foundation CEO lauds "wearable technology" in empowering COPD patients
Monday, May 4, 2015
John Walsh, president and co-founder of the Alpha-1 Foundation and the COPD Foundation, is featured in a recent Washington Post piece on the benefits of "wearable technology" for people who suffer from chronic obstructive pulmonary disease (COPD). There’s increasing clinical evidence of the value of continuous vital sign data in managing chronic diseases and monitoring...
Divider

Scaled-back 21st Century Cures bill that aims to speed drug approvals allays critics' concerns

Monday, May 4, 2015
21st Century Cures legislation that would have accelerated the pace of federal drug approvals in a way critics said threatened to erode patient safety was formally released April 30, in a scaled-back version with many of the most...
Divider

Smart inhalers may help find asthma "hot spots" in U.S.

Monday, May 4, 2015
A high-tech medical study that used "smart" emergency inhalers to identify possible asthma hot spots in Louisville, KY, is moving into a second phase after showing it helped patients better control their illness while exploring ties to local air...
Divider

Alpha-1 Hero Walk raises nearly $25,000 for Foundation research and programs, honors 'tough cookie' Charlotte Mattison

Monday, May 4, 2015
Early on April 25, the clouds cleared and the sun showed up along with 75 walkers, supporters and volunteers at the Alpha-1 Hero Walk. Held for the fifth year at Deep Run Park in Henrico, VA, the event raised nearly $25,000 for Alpha-1 Foundation...
Divider

Patient assistance restored; Alphas to keep premium, co-pay aid for 2015

Thursday, April 30, 2015
There’s good news for the Alpha-1 community. The Alpha-1 Foundation and AlphaNet have been working with Patient Services, Inc. (PSI) to help Alpha-1 patients who have been faced with a reduction in assistance for their insurance premiums or...
Divider

Join in the George Washington Bridge Walk on May 2

Thursday, April 30, 2015
The NY/NJ Alpha-1 Support Group, Alpha-1 Foundation, and James P. Mara Center for Lung Disease at Mount Sinai invite Alphas, friends and family to help raise awareness and funds for a cure at the 8th annual George Washington Bridge Walk on...
Divider

Foundation to mark Emerald Anniversary at Celebration of Life on May 1

Thursday, April 30, 2015
Two years ago, the Alpha-1 Foundation commemorated the 50th anniversary of Alpha-1 Antitrypsin Deficiency’s discovery. This year marks another auspicious beginning: 20 years ago, the Foundation was created by three determined Alphas —...
Divider

Meet and talk with Alpha-1 experts at patient-family forum May 16 during ATS conference in Denver

Wednesday, April 29, 2015
The Alpha-1 Foundation, a member of the American Thoracic Society Public Advisory Roundtable (ATS PAR), will participate in the Meet-the-Experts patient-family forum during ATS 2015 International Conference, May 15-20 in...
Divider

BU Alpha-1 Center Director Darrell Kotton gets $1.74 million award for new lung facility

Wednesday, April 29, 2015
The Massachusetts Life Sciences Center (MLSC) has awarded $1.74 million to Boston University’s Center for Regenerative Medicine (CReM) to help build a new lung regeneration facility. The new facility, to be housed at CReM...
Divider

Foundation to mark Emerald Anniversary at Celebration of Life on May 1

Wednesday, April 29, 2015
Two years ago, the Alpha-1 Foundation commemorated the 50th anniversary of Alpha-1 Antitrypsin Deficiency’s discovery. This year marks another auspicious beginning: 20 years ago, the Foundation was created by three determined Alphas —...
Divider

Despite challenges, Alpha Terry Nickerson determined to keep climbing

Wednesday, April 29, 2015
Terry Nickerson likes to quote American pop singer Frankie Laine’s version of “You Gave Me a Mountain,” from 1969. The song ends: So this time, Lord, you gave me a mountain A mountain I may never climb And it isn’t a...
Divider

Statue of Ron Fraser, beloved UM baseball coach and Alpha-1 champion, now stands "in the place he loved"

Tuesday, April 28, 2015
Although the Miami Hurricanes baseball team lost to Florida State by one heartbreaking run, there was celebration at University of Miami's Mark Light Field on April 24.   Before the game, a bronze, 7-foot-tall statue of...
Divider

Global Alpha-1 community comes together in Barga to share experiences, discuss solutions

Wednesday, April 15, 2015
The 5th Alpha-1 Global Patient Congress in Barga, Italy, held April 9-11, drew 200 people from 26 countries to hear renowned Alpha-1 scientists, clinicians, experts, industry partners, patients, caregivers and family speak on the...
Divider
12345678910 Last

Article Search

Enter keywords in text box and click Search button for results.

Archive