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Bodybuilder fights Alpha-1 breathing problems with exercise

Bodybuilder fights Alpha-1 breathing problems with exercise
Thursday, February 4, 2016
Nobody has to tell Bob Thornsberry the importance of exercise. He first began lifting weights regularly when he was a fullback on the high school football team in Memphis, Michigan. “When I got into the Air Force shortly after high school in 1969, I got back into weightlifting right after basic training,” says Thornsberry, now 65, of Land O’ Lakes, Florida. “Later, I...
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James F. “Jim” Hosley, upstate New York support group leader, passes away

Monday, February 1, 2016
Shortly after James F. “Jim” Hosley was diagnosed with Alpha-1 in 1997, he received a foreboding document from a doctor. Hosley, then 51, read that the life expectancy of an Alpha was only 57. “To say we were devastated is an...
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Alphas to join experts at “Alpha-1 Week at the ATS” education event on Feb. 13

Monday, February 1, 2016
LA JOLLA, CA – The American Thoracic Society’s Public Advisory Roundtable (ATS PAR) and its partners, the Alpha-1 Foundation and the University of California San Diego, will host the Alpha-1 Antitrypsin Deficiency Patient Education...
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Sanders blocks Obama nominee to lead FDA, citing industry ties

Wednesday, January 27, 2016
WASHINGTON — U.S. Democratic presidential candidate Bernie Sanders said on Tuesday he has placed a hold on President Barack Obama's nominee to head the Food and Drug Administration, claiming he is too close to the pharmaceutical industry to...
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William (Bill) Scheuerman, active in New York and New Jersey Alpha-1 support group, passes away

Monday, January 25, 2016
William "Bill" James Scheuerman, DMD (Doctor of Dental Medicine), 59, of Branchburg, New Jersey, passed away on Jan. 20.  Scheuerman participated in several events that raised awareness of Alpha-1 and generated money for research to...
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NORD to offer Alpha-1 patient premium and copayment assistance

Thursday, January 21, 2016
The National Organization for Rare Disorders (NORD) is offering Alpha-1 premium and copayment assistance programs for 2016. The NORD program begins at the opening of business on Monday, Jan. 25, at 9 am Eastern Time. The program will offer...
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PSI will continue Alpha-1 premium, copay assistance programs in 2016

Thursday, January 21, 2016
Patient Services, Inc. (PSI) has announced that it will continue Alpha-1 premium and copayment assistance programs in 2016. PSI, a not-for-profit organization that supports people living with chronic conditions, has released a document that...
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Mayo Clinic to create lung restoration center to increase the number of lungs available for transplant

Thursday, January 21, 2016
The Mayo Clinic in Jacksonville, Florida and United Therapeutics Corp., a biotechnology company, are working together to create a lung restoration center that they say could double the number of lungs available for transplant in the U.S. The Mayo...
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Alphas need fitness program to improve breathing, says fitness trainer dealing with her own breathing challenges

Wednesday, January 20, 2016
Jodi Fillmore was in the best shape of her life more than four years ago when she entered a bodybuilding competition. When the event was over, she had beaten all of her competitors except one, and had designs on a professional bodybuilding...
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No health insurance yet for 2016? Here’s what to do by Jan. 31

Monday, January 18, 2016
The 2016 Open Enrollment period for individuals and families to choose a health insurance plan under the Affordable Care Act is quickly coming to a close. While you may not plan on getting hurt or sick this year, these things happen every day....
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ATS president to headline Alpha-1 Patient Education Event in San Diego

Friday, January 15, 2016
The president of the American Thoracic Society (ATS) will be the headline speaker among a group of outstanding doctors at the free Alpha-1 Patient Education Event on Saturday, Feb. 13. The event will take place at The University of...
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Study: Music therapy improves COPD symptoms

Friday, January 15, 2016
A new study has found that patients with chronic obstructive pulmonary disease (COPD) and other chronic respiratory conditions showed signs of improvement in symptoms, psychological well-being, and quality of life when exposed to music therapy in...
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Poll finds most uninsured unaware of open enrollment deadline

Thursday, January 14, 2016
WASHINGTON (AP) -- Most uninsured Americans are sitting on the sidelines as sign-up season under the federal health law comes to a close, according to a new poll that signals the nation's historic gains in coverage are slowing. The survey...
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