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Patient assistance restored; Alphas to keep premium, co-pay aid for 2015

Patient assistance restored; Alphas to keep premium, co-pay aid for 2015
Thursday, April 30, 2015
There’s good news for the Alpha-1 community. The Alpha-1 Foundation and AlphaNet have been working with Patient Services, Inc. (PSI) to help Alpha-1 patients who have been faced with a reduction in assistance for their insurance premiums or co-pay assistance to help cover the cost of their medications. As a result of our combined efforts, we are pleased to make the following...
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Join in the George Washington Bridge Walk on May 2

Thursday, April 30, 2015
The NY/NJ Alpha-1 Support Group, Alpha-1 Foundation, and James P. Mara Center for Lung Disease at Mount Sinai invite Alphas, friends and family to help raise awareness and funds for a cure at the 8th annual George Washington Bridge Walk on...
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Foundation to mark Emerald Anniversary at Celebration of Life on May 1

Thursday, April 30, 2015
Two years ago, the Alpha-1 Foundation commemorated the 50th anniversary of Alpha-1 Antitrypsin Deficiency’s discovery. This year marks another auspicious beginning: 20 years ago, the Foundation was created by three determined Alphas —...
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Meet and talk with Alpha-1 experts at patient-family forum May 16 during ATS conference in Denver

Wednesday, April 29, 2015
The Alpha-1 Foundation, a member of the American Thoracic Society Public Advisory Roundtable (ATS PAR), will participate in the Meet-the-Experts patient-family forum during ATS 2015 International Conference, May 15-20 in...
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BU Alpha-1 Center Director Darrell Kotton gets $1.74 million award for new lung facility

Wednesday, April 29, 2015
The Massachusetts Life Sciences Center (MLSC) has awarded $1.74 million to Boston University’s Center for Regenerative Medicine (CReM) to help build a new lung regeneration facility. The new facility, to be housed at CReM...
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Foundation to mark Emerald Anniversary at Celebration of Life on May 1

Wednesday, April 29, 2015
Two years ago, the Alpha-1 Foundation commemorated the 50th anniversary of Alpha-1 Antitrypsin Deficiency’s discovery. This year marks another auspicious beginning: 20 years ago, the Foundation was created by three determined Alphas —...
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Despite challenges, Alpha Terry Nickerson determined to keep climbing

Wednesday, April 29, 2015
Terry Nickerson likes to quote American pop singer Frankie Laine’s version of “You Gave Me a Mountain,” from 1969. The song ends: So this time, Lord, you gave me a mountain A mountain I may never climb And it isn’t a...
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Statue of Ron Fraser, beloved UM baseball coach and Alpha-1 champion, now stands "in the place he loved"

Tuesday, April 28, 2015
Although the Miami Hurricanes baseball team lost to Florida State by one heartbreaking run, there was celebration at University of Miami's Mark Light Field on April 24.   Before the game, a bronze, 7-foot-tall statue of...
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Global Alpha-1 community comes together in Barga to share experiences, discuss solutions

Wednesday, April 15, 2015
The 5th Alpha-1 Global Patient Congress in Barga, Italy, held April 9-11, drew 200 people from 26 countries to hear renowned Alpha-1 scientists, clinicians, experts, industry partners, patients, caregivers and family speak on the...
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Genetic Alliance to coordinate PCORI’s Patient Powered Research Networks

Thursday, April 9, 2015
The Genetic Alliance has been awarded a contract to lead the PCORnet Coordinating Center effort of leveraging the value of the Patient Powered Research Networks (PPRNs).  The 29 PPRNs, one of which has been awarded to the COPD Foundation,...
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Alpha DC Young, of Utah, grateful for plasma donations

Tuesday, April 7, 2015
DC Young, an Alpha who lives in Toquerville, UT, was recently the subject of a story by KSL.com on the importance of plasma donations. Young, a board member at the Alpha-1 Association before its merger with the Alpha-1 Foundation in 2014,...
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Alpha-1 patient aided by device awaiting FDA OK that acts as "dialysis for the lungs"

Monday, April 6, 2015
When 31-year-old Joshua Hosier began feeling out of breath frequently, he chalked it up at first to being out of shape and figured he should hit the gym. But the symptoms worsened and led Hosier to see a doctor, who diagnosed him a year ago with...
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Letter to the community: Alpha-1 Foundation expresses concerns on patient assistance

Monday, April 6, 2015
The Alpha-1 Foundation is deeply concerned about Alpha-1 patients who are in danger of losing, have already lost, or have experienced a reduction in assistance with their insurance premiums or co-pay assistance to help cover the cost of their...
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