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The Lancet publishes RAPID trial results showing effectiveness of Alpha-1 augmentation therapy

The Lancet publishes RAPID trial results showing effectiveness of Alpha-1 augmentation therapy
Thursday, May 28, 2015
The Alpha-1 Foundation on Thursday congratulated the investigators and sponsor of the RAPID Trial, demonstrating the effectiveness of augmentation therapy in slowing emphysema due to Alpha-1 Antitrypsin Deficiency, on the publication of the trial in The Lancet, one of the world’s oldest and most prestigious medical journals. The Lancet article was posted online this week. When the...
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COPD, Alpha-1 Foundation President John Walsh joins panel Friday at NIH Precision Medicine workshop

Wednesday, May 27, 2015
John Walsh, president and co-founder of the COPD Foundation and Alpha-1 Foundation, will participate in a panel discussion as part of a National Institutes of Health workshop on the Precision Medicine Initiative.  The public workshop,...
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A lung-cancer vaccine used since 2011 in Cuba is coming to the U.S.

Wednesday, May 27, 2015
When New York Gov. Andrew Cuomo headed to Havana on a historic trade mission in April, he returned with the promise of an important commodity: a Cuban-developed lung cancer vaccine. The vaccine, called CimaVax, has been researched in Cuba for 25...
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FDA approves Stiolto Respimat inhaler as once-daily treatment for COPD

Tuesday, May 26, 2015
Boehringer Ingelheim on Tuesday announced that the U.S. Food and Drug Administration (FDA) approved once-daily Stiolto Respimat inhalation spray, a combination of tiotropium bromide and olodaterol. It has been approved as a long-term,...
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For Alphas everywhere, Robert Brigance Jr. is cycling across the U.S. to raise research funds, awareness

Friday, May 22, 2015
Robert Brigance Jr. is dedicated — dedicated to his family, to his friends and to finding a cure for Alpha-1. On May 25, Brigance’s commitment to helping others will be manifested through his passion — cycling. Brigance, of...
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Louisiana Alpha Pat May prepares to celebrate 25-year lung transplant anniversary with gratitude

Friday, May 22, 2015
Twenty-three thousand is the average number of breaths a person takes in a day. It’s about the same number of things that Pat May is thankful for. For the last 24 years, 52-year-old May has been able to enjoy life’s simple pleasures...
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House committee unanimously passes 21st Century Cures FDA reform bill

Thursday, May 21, 2015
The 21st Century Cures Act was unanimously approved by the House Energy and Commerce Committee on Thursday in a 51-0 vote. The goal of the nonpartisan legislation is to aid in modernizing and personalizing health care while encouraging greater...
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TAP partner Alnylam files application in U.K. for clinical trial on treatment for Alpha-1 liver disease

Monday, May 18, 2015
Alnylam Pharmaceuticals announced Sunday that it has filed a Clinical Trial Application (CTA) with the U.K. Medicines and Healthcare products Regulatory Agency (MHRA) to initiate a Phase 1/2 clinical trial with ALN-AAT, an injectable RNAi...
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Vote on NHLBI forum question to highlight Alpha-1, COPD research issues

Friday, May 15, 2015
The Alpha-1 Foundation has submitted a question to the National Institutes of Health's National Heart, Lung and Blood Institute (NHLBI) Strategic Visioning Forum: Do Alpha-1 Antitrypsin Deficiency and Cystic Fibrosis Inform COPD? Have we been...
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Foundation awards record $1.8 million to 2015 research grant recipients at ATS reception May 18

Thursday, May 14, 2015
The Alpha-1 Foundation announced its 2015 grant awardees on Monday, May 18, during a reception at the American Thoracic Society (ATS) International Conference in Denver. “For the first time in the program’s history, the Foundation...
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HHS lifts ban on organ donors with HIV

Wednesday, May 13, 2015
People with HIV will no longer be prohibited from donating organs in the U.S.  The Department of Health and Human Services on Friday lifted a regulatory hurdle that has prevented use of organs from infected patients in research...
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8th annual George Washington Bridge Walk draws 100 walkers, raises $25,000

Tuesday, May 12, 2015
It was a banner weekend. Just nine or so hours after the Alpha-1 Foundation’s annual Celebration of Life event in Miami Beach, a little farther north — about 1,200 miles farther — Alphas, friends and family gathered on May 2 for...
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NIH GRADS study seeking MZ, ZZ participants; hear discussion May 18 at ATS conference

Monday, May 11, 2015
The Genomic Research in Alpha-1 Antitrypsin Deficiency and Sarcoidosis (GRADS) program will be showcased during a session at the American Thoracic Society (ATS) 2015 International Conference, May 15-20 in Denver. The program, at 12:15 p.m....
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