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John Walsh recovering from fall; former Board chair Ab Rees named Acting CEO of Alpha-1 Foundation

John Walsh recovering from fall; former Board chair Ab Rees named Acting CEO of Alpha-1 Foundation
Tuesday, February 9, 2016
CORAL GABLES, FL – Ab Rees, Immediate Past Chair of the Alpha-1 Foundation, has been named Acting CEO and President of the Foundation while John Walsh, the Foundation’s Co-founder, President and CEO, recovers from injuries incurred when he fell on the icy streets of Washington, DC in late January. Ab Rees Rees, of Kansas City, MO, is a second-generation railroad executive with 50...
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Pennsylvania doctor helps Alpha fight lung disease

Tuesday, February 9, 2016
James Vantine built a home workshop after he retired as a shop teacher at Ridgway High School. He planned on spending many hours in his workshop, but a rare lung disease zapped his energy and left him lethargic. Stephen Kovacs, DO "I would...
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Gulf Coast support group leader raises awareness for Alpha-1

Monday, February 8, 2016
Carol Logan watched her two sisters die in their 30s of a rarely diagnosed disease for which there was no treatment at the time. And while her sisters were growing increasingly ill, Carol learned that she too had the disorder that caused the...
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UK researchers claim Alpha-1 developed to combat Viking worm infestations

Monday, February 8, 2016
In the complex world of DNA, a gene that develops to protect a population from one health problem, may later put that same population at risk for a very different problem. According to researchers in England, this is true of Alpha-1 Antitrypsin...
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Bodybuilder fights Alpha-1 breathing problems with exercise

Thursday, February 4, 2016
Nobody has to tell Bob Thornsberry the importance of exercise. He first began lifting weights regularly when he was a fullback on the high school football team in Memphis, Michigan. Bob Thornsberry “When I got into the Air Force shortly...
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James F. “Jim” Hosley, upstate New York support group leader, passes away

Monday, February 1, 2016
Shortly after James F. “Jim” Hosley was diagnosed with Alpha-1 in 1997, he received a foreboding document from a doctor. Hosley, then 51, read that the life expectancy of an Alpha was only 57. “To say we were devastated is an...
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Alphas to join experts at “Alpha-1 Week at the ATS” education event on Feb. 13

Monday, February 1, 2016
LA JOLLA, CA – The American Thoracic Society’s Public Advisory Roundtable (ATS PAR) and its partners, the Alpha-1 Foundation and the University of California San Diego, will host the Alpha-1 Antitrypsin Deficiency Patient Education...
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Sanders blocks Obama nominee to lead FDA, citing industry ties

Wednesday, January 27, 2016
WASHINGTON — U.S. Democratic presidential candidate Bernie Sanders said on Tuesday he has placed a hold on President Barack Obama's nominee to head the Food and Drug Administration, claiming he is too close to the pharmaceutical industry to...
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William (Bill) Scheuerman, active in New York and New Jersey Alpha-1 support group, passes away

Monday, January 25, 2016
William "Bill" James Scheuerman, DMD (Doctor of Dental Medicine), 59, of Branchburg, New Jersey, passed away on Jan. 20.  Scheuerman participated in several events that raised awareness of Alpha-1 and generated money for research to...
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NORD to offer Alpha-1 patient premium and copayment assistance

Thursday, January 21, 2016
The National Organization for Rare Disorders (NORD) is offering Alpha-1 premium and copayment assistance programs for 2016. The NORD program begins at the opening of business on Monday, Jan. 25, at 9 am Eastern Time. The program will offer...
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PSI will continue Alpha-1 premium, copay assistance programs in 2016

Thursday, January 21, 2016
Patient Services, Inc. (PSI) has announced that it will continue Alpha-1 premium and copayment assistance programs in 2016. PSI, a not-for-profit organization that supports people living with chronic conditions, has released a document that...
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Mayo Clinic to create lung restoration center to increase the number of lungs available for transplant

Thursday, January 21, 2016
The Mayo Clinic in Jacksonville, Florida and United Therapeutics Corp., a biotechnology company, are working together to create a lung restoration center that they say could double the number of lungs available for transplant in the U.S. The Mayo...
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Alphas need fitness program to improve breathing, says fitness trainer dealing with her own breathing challenges

Wednesday, January 20, 2016
Jodi Fillmore was in the best shape of her life more than four years ago when she entered a bodybuilding competition. When the event was over, she had beaten all of her competitors except one, and had designs on a professional bodybuilding...
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