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Join the #GivingTuesday movement for Alpha-1

Join the #GivingTuesday movement for Alpha-1
Tuesday, December 1, 2015
After spending time with loved ones on Thanksgiving, shopping on Black Friday and finding great online deals on Cyber Monday, join the movement that gives to those in need: DONATE on Giving Tuesday to the Alpha-1 Foundation.   #GivingTuesday is an international movement dedicated to giving back. It unites people all over the world in sharing our capacity to care for and empower...

Short time left for Medicare open enrollment

Monday, November 30, 2015
Medicare open enrollment ends on Monday, Dec. 7. Make sure your Medicare health plan and prescription drug coverage are best meeting your needs. Knowing what to ask and where to go for answers are vital parts of navigating the Medicare open...

Alpha completes 17-mile Virtual Walk

Wednesday, November 25, 2015
John Hayes walks a lot. Averaging seven miles daily, he works his way up to 10 miles at least one day a week. When he decided to do the Virtual Walk for Alpha-1, he wanted it to be even more special, and it was. Hayes took a solitary stroll from...

More than 240 join “Virtual Walk for Alpha-1” at CSL manufacturing plants in Kankakee, Illinois and King of Prussia, Pennsylvania

Tuesday, November 24, 2015
More than 240 employees of CSL Behring’s manufacturing facility in Kankakee, Illinois donned purple shirts and stepped up to spread awareness of Alpha-1 in support of the Alpha-1 Foundation’s Virtual Walk. “CSL Behring Kankakee...

Alpha-1 Antitrypsin Deficiency Gains Awareness

Wednesday, November 18, 2015
The story about Kerri Evensen of Wisconsin, who discovered she had a life-threatening aneurysm while undergoing routine testing for a liver donation to her four-year-old son Auden -- a liver-affected Alpha -- has increased awareness of...

Alpha-1 advocate Nancy C. Irsay, widow of former Indianapolis Colts owner, dies

Friday, November 13, 2015
Alpha Nancy C. Irsay, 65, the widow of Indianapolis Colts owner Robert Irsay, died Nov. 7, 2015. Irsay, a lung-affected Alpha, urged people with recurring asthma, breathing problems and chronic obstructive pulmonary disease (COPD) to get tested...

Orlando Education Day sets attendance record at 212; Step Forward for Alpha-1 Walk raises $35,000

Thursday, November 12, 2015
The Alpha-1 Education Day in Orlando, FL on Saturday, Nov. 7, ended the year's Education Days with a bang, setting an attendance record of 212. It was also a dramatic way, in one of the last major events of the year, to mark 2015 as the 20th...

“Jaunt for John” Virtual Walk raises over $8,000

Thursday, November 12, 2015
John Byrnes, a liver-affected Alpha, desperately needed a transplant. But doctors said he was not sick enough to move to the top of the transplant list. He died on Nov. 28, 2014 after fighting a brave battle with Alpha-1. John and Ellen...

Nurse practitioner insists on testing patients for Alpha-1

Monday, November 9, 2015
When Carolyn LaMar’s patients come to her with emphysema, shortness of breath, recurring chest colds or any other kind of ongoing breathing problem, she insists on testing them for Alpha-1. “I just rule it out,” said LaMar, 67,...

Uninsured rate drops to 9 percent under Obamacare

Friday, November 6, 2015
The Obama administration received some good news on Thursday after a Centers for Disease Control and Prevention report said the uninsured rate has hit a new low since Obamacare took effect. According to the CDC report, the uninsured rate was at 9...

PSI announces medical financial assistance for Alphas

Thursday, November 5, 2015
Patient Services, Inc. (PSI), a not-for-profit organization that supports people living with chronic conditions, has announced the program criteria that will be in place for 2016 copay and premium assistance in  Alpha-1 Antitrypsin...

Ohio recognizes November 2015 as Alpha-1 Awareness Month

Wednesday, November 4, 2015
Earlier this year, Ohio State Rep. Terry Johnson introduced a bill that designates November 2015 as “Alpha-1 Antitrypsin Deficiency Awareness Month”. HB 29 was passed unanimously by the Ohio House and Senate and was signed by the...

PPTA magazine "The Source" features Alpha-1 Foundation Research Registry in fall issue

Tuesday, November 3, 2015
The Source, the magazine of the Plasma Protein Therapeutics Association (PPTA), features the Alpha-1 Foundation Research Registry in its lead article on the vital role played by patient registries in rare disease communities. The magazine quotes...

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