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Global Alpha-1 community comes together in Barga to share stories

Global Alpha-1 community comes together in Barga to share stories
Wednesday, April 15, 2015
The 5th Alpha-1 Global Patient Congress in Barga, Italy, held on the April 9-11, drew 200 people from 26 countries to hear renowned Alpha-1 scientists, clinicians, experts, industry partners, patients, caregivers and family speak on the status of the latest research, the regulatory framework for licensing therapies for rare disease in Europe, the status of patient registries and...
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Foundation to mark Emerald Anniversary at Celebration of Life on May 1

Thursday, April 9, 2015
Two years ago, the Alpha-1 Foundation commemorated the 50th anniversary of Alpha-1 Antitrypsin Deficiency’s discovery. This year marks another auspicious beginning: 20 years ago, the Foundation was created by three determined Alphas —...
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Alpha DC Young, of Utah, grateful for plasma donations

Tuesday, April 7, 2015
DC Young, an Alpha who lives in Toquerville, UT, was recently the subject of a story by KSL.com on the importance of plasma donations. Young, a board member at the Alpha-1 Association before its merger with the Alpha-1 Foundation in 2014,...
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Alpha-1 patient aided by device awaiting FDA OK that acts as "dialysis for the lungs"

Monday, April 6, 2015
When 31-year-old Joshua Hosier began feeling out of breath frequently, he chalked it up at first to being out of shape and figured he should hit the gym. But the symptoms worsened and led Hosier to see a doctor, who diagnosed him a year ago with...
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Tax time: How to claim a health coverage exemption

Thursday, April 2, 2015
Under the Affordable Care Act, everyone who can afford to is now required by law to have health coverage.  If you can’t afford coverage or meet other conditions, you may qualify for an exemption. It is important for you to know that...
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ATS, ERS make recommendations for future COPD research

Thursday, April 2, 2015
The American Thoracic Society (ATS) and the European Respiratory Society have combined resources to issue a series of recommendations for the future of chronic obstructive pulmonary disease (COPD) research to attempt to determine the impact...
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20 Years: Alphas Worldwide

Wednesday, April 1, 2015
The Alpha-1 Foundation kicked off its 20th anniversary celebration on Feb. 3. Each month throughout this year, we will highlight groups and people who have played significant roles in the Foundation’s growth and success. In April, we pay...
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Foundation Clinical, Research Registry directors appointed to PlasmaTech Scientific Advisory Board

Wednesday, April 1, 2015
PlasmaTech Biopharmaceuticals has appointed the Alpha-1 Foundation's Clinical Director Robert Sandhaus, MD, PhD, and Research Registry Director Charlie Strange, MD, to its Scientific Advisory Board (SAB).  The SAB will serve as a...
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Foundation to mark Emerald Anniversary at Celebration of Life on May 1

Wednesday, April 1, 2015
Two years ago, the Alpha-1 Foundation commemorated the 50th anniversary of Alpha-1 Antitrypsin Deficiency’s discovery. This year marks another auspicious beginning: 20 years ago, the Foundation was created by three determined Alphas —...
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In tribute, Leonard Nimoy's daughter developing documentary on COPD

Monday, March 30, 2015
Julie Nimoy, daughter of Leonard Nimoy, has announced plans to develop a new documentary film on chronic obstructive pulmonary disease (COPD). The documentary will be called COPD: The Logical Way to Improve Lung Function and Breathe...
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Join in the George Washington Bridge Walk on May 2

Tuesday, March 24, 2015
The NY/NJ Alpha-1 Support Group, Alpha-1 Foundation, and James P. Mara Center for Lung Disease at Mount Sinai invite Alphas, friends and family to help raise awareness and funds for a cure at the 8th annual George Washington Bridge Walk on...
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After life-saving liver transplant, Irish Alpha will always be grateful to organ donor

Monday, March 23, 2015
Having been diagnosed with Alpha-1 Antitrypsin Deficiency at just 6 months old, Colm Costello knows the importance of organ donors. Costello, of Ballinamore, County Leitrim, Ireland, was the recipient of a liver transplant in May 2007,...
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Statue of Ron Fraser, famed UM coach and Alpha-1 champion, to be unveiled April 24

Friday, March 20, 2015
The University of Miami will host the dedication and unveiling of a statue of legendary UM baseball coach Ron Fraser at 4 p.m. Friday, April 24 on the DiMare Family Champions Plaza outside of Alex Rodriguez Park at Mark Light Field on the UM...
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