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Alpha-1 Kids in the spotlight at National Conference

Alpha-1 Kids in the spotlight at National Conference
Tuesday, June 30, 2015
The Alpha-1 Foundation’s Alpha-1 Kids program, as well as children with Alpha-1, will be highlighted repeatedly during the Alpha-1 National Education Conference July 24-26 in Orange County, California. “We want to bring our Alpha-1 Kids program to a new level,” said Karen Erickson, the Foundation’s associate executive director of community engagement. “As part of...
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Research Registry Update summer issue tells you what's happening in Alpha-1 research, how you can sign up

Tuesday, June 30, 2015
A new issue of the Alpha-1 Foundation's Research Registry Update has been mailed out to all of the Registry's more than 4,800 members. As always, the Registry Update presents information on the current research studies being managed by the...
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What will happen to state-run insurance exchanges?

Monday, June 29, 2015
The Supreme Court upheld a key part of the Affordable Care Act on Thursday, enabling health insurance subsidies to all qualifying Americans. The ruling firmly establishes the legality of Obamacare, but quite a few states had already moved...
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Committee recommends European Medicines Agency approve CSL's Alpha-1 augmentation therapy

Monday, June 29, 2015
A key committee has recommended that the European Medicines Agency (EMA) approve Respreeza, CSL Behring's augmentation therapy for Alpha-1 Antitrypsin Deficiency. The EMA is the European equivalent of the U.S. Food and Drug Administration...
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What does the Supreme Court decision mean for me?

Thursday, June 25, 2015
I purchased health insurance from the Health Insurance Marketplace or HealthCare.gov Great news! Your affordable quality coverage has not changed. The Supreme Court has confirmed that if you qualify, you can still get financial help to lower the...
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US Supreme Court upholds the Affordable Healthcare Act

Thursday, June 25, 2015
Washington, DC -  Obamacare has survived -- again. In a 6-3 decision, the Supreme Court saved the controversial health care law that will define President Barack Obama's administration for generations to come. The ruling holds that the...
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Baxalta welcomes Alpha-1 patients at Town Hall meeting and fundraising "Spinnathon"

Tuesday, June 23, 2015
John Walsh, co-founder and CEO of the Alpha-1 Foundation, and AlphaNet Coordinator Terry Leffler kicked off a "town hall" today  meeting today as part of the introduction of Baxalta,  a new biopharmaceutical company that is...
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The future is crowdshaped: Harnessing the power of open-source innovation to plot a new course for COPD

Monday, June 22, 2015
The following is by Andrea Conners, Media Services Director for pharmaphorum media in the United States, who took part in the recent "Crowdshaped" event to suggest ways to help people living with COPD. "When you can't breathe, nothing...
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CMS confirms at home care saves money, improves care

Thursday, June 18, 2015
The Centers for Medicare & Medicaid Services (CMS) today announced positive and promising results from the first performance year of the Independence at Home Demonstration, including both higher quality care and lower Medicare...
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Foundation encourages Alpha-1 patients, caregivers to comment at FDA meeting on Patient-Focused Drug Development

Monday, June 15, 2015
The Alpha-1 Foundation encourages Alphas and Alpha-1 caregivers to comment at a public meeting being held by the U.S. Food and Drug Administration (FDA) Sept. 29 to discuss Patient-Focused Drug Development for Alpha-1 Antitrypsin Deficiency...
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FDA grants Arrowhead orphan drug designation for potential therapy for Alpha-1 liver disease

Wednesday, June 10, 2015
The U.S. Food and Drug Administration (FDA) has granted orphan drug designation for ARC-AAT, a potential therapy for Alpha-1 Antitrypsin Deficiency now being developed by Arrowhead Research Corp. of California. The “gene silencing”...
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Alpha-1 Patient Assistance Advisory Council to collaborate, advise on patient assistance programs

Tuesday, June 9, 2015
The Alpha-1 Foundation and AlphaNet have formed an Alpha-1 Patient Assistance Advisory Council to make recommendations and provide guidance on patient assistance programs through collaboration with assistance administrators, specialty pharmacies,...
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Study finds connection between increased pollution and increased death rate

Monday, June 8, 2015
Even low levels of air pollution may not be safe, a new study suggests. The Environmental Protection Agency rates air pollution based on concentrations of particles smaller than 2.5 microns, or PM2.5. It generally regards as safe an annual...
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