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Alpha Stories

National Conference offers leading experts, latest research and fun

National Conference offers leading experts, latest research and fun
Tuesday, April 12, 2016
The following article appears in the Spring 2016 edition of Alpha-1-To-One magazine, which has been mailed out for free to more than 20,000 subscribers.  The 25th Annual Alpha-1 National Education Conference will be held June 24-26 in Miami, Florida (for the first time ever!) at the InterContinental Miami Hotel. The National Conference is the largest gathering of Alphas and families in...
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Program makes more lungs available for transplant

Program makes more lungs available for transplant
Thursday, April 7, 2016
The following article appears in the Spring 2016 edition of Alpha-1-To-One magazine, which has been mailed out for free to more than 20,000 subscribers. In 2011, Martin Zamora, MD, and Michael Weyant, MD, of the University of Colorado lung transplant program began working on the NOVEL trial of the ex vivo lung perfusion (EVLP) system sponsored by XVIVO Perfusion, Inc. Martin Zamora,...
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Celebrating Women's History Month - Miriam O’Day

Celebrating Women's History Month - Miriam O’Day
Wednesday, March 23, 2016
This story first appeared in the Fall 2015 issue of Alpha-1-To-One Magazine. Miriam O’Day and John Walsh first met in the late 1990s, when O’Day was vice president of the Immune Deficiency Foundation (IDF). They worked together for years on blood safety issues that were critical to both of them, since the immune deficiency and Alpha-1 communities both depended on...
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Celebrating Women's History Month - Mary Pierce

Celebrating Women's History Month - Mary Pierce
Wednesday, March 16, 2016
This is an excerpt of a story that originally appeared in the Spring 2013 issue of Alpha-1-To-One Magazine. Mary Pierce was diagnosed with Alpha-1 on her 40th birthday, Feb. 16, 1987. She’d been home sick from work for about a week when she got a call from her new primary care doctor who ran a small practice in the little town of St. Joseph, Michigan. Both her parents were smokers,...
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Celebrating Women's History Month - Sandy Lindsey and Susan Stanley

Celebrating Women's History Month - Sandy Lindsey and Susan Stanley
Wednesday, March 9, 2016
This story first appeared in the Spring 2004 issue of Alpha-1-To-One Magazine. When Alexandra “Sandy” Lindsey, Susan Stanley, and John Walsh met one another in the early 1990s, they quickly became fast friends, despite their disparate personalities. Stanley was a diminutive dynamo, energetic and gregarious. Lindsey was an elegant woman with a strong social conscience, a knack for...
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Oklahoma House passes bill cutting 111,000 from Medicaid

Oklahoma House passes bill cutting 111,000 from Medicaid
Tuesday, March 1, 2016
OKLAHOMA CITY (AP) — Facing a $1.3 billion hole in next year's budget, the Oklahoma House on Wednesday passed legislation that would cut 111,000 Oklahoma residents with dependents from Medicaid and potentially save up to $130 million in state-appropriated health care funds. But implementation of the measure is dependent on the federal government's approval of a waiver that would permit...
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Alpha-1 Foundation Board Member organizes Rare Disease Day event in Indiana

Alpha-1 Foundation Board Member organizes Rare Disease Day event in Indiana
Wednesday, February 24, 2016
Tom Corron noticed that his breathing was becoming more difficult. He was suffering from respiratory infections that lingered for a long time, and it was getting harder for him to climb stairs. Tom Corron He visited his doctor, who advised him in 2005 that his lung capacity was at 42 percent, that he had lung damage, and that he would need a lung transplant in five years. He was tested and...
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Alpha-1 support group leader educates about the condition

Alpha-1 support group leader educates about the condition
Monday, February 22, 2016
It’s not what’s there. It’s what isn’t there. Carol Logan displays some of the information she has compiled on Alpha-1. Some people in the United States have a hereditary condition called Alpha-1 Antitrypsin Deficiency (Alpha-1). Alpha-1 occurs when there is a lack of a protein in the blood called alpha-1 antitrypsin, or the alpha-1 protein....
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