Topic: Advocacy, Getting Involved, Living with Alpha-1
The 2024 State of Alpha-1 Programs was presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2024 Virtual Alpha-1 Education Day. Additionally, Jason Medeiros, Alpha-1 Support Group Leader and Advocate, presented an introduction.
Introduction:
Jason Medeiros, Alpha-1 Support Group Leader and Advocate
Presentation:
Scott Santarella, President & CEO, Alpha-1 Foundation
The 2024 State of Alpha-1 Programs was presented by Scott Santarella, President & CEO of the Alpha-1 Foundation at the 2024 Virtual Alpha-1 Education Day. Additionally, Catherine Vernon, Member of the Board of Directors at the Alpha-1 Foundation presented an introduction.
Introduction:
Catherine Vernon, Member of the Board of Directors, Alpha-1 Foundation
Presentation:
Scott Santarella, President & CEO, Alpha-1 Foundation
The 2024 State of Alpha-1 Research was presented by Dr. Andrew Wilson at the 2024 Virtual Alpha-1 Education Day. Additionally, Jena Frye, Alpha Mom, MASAC Member, presented an introduction.
Introduction:
Jena Frye, Alpha Mom, MASAC Member
Presentation:
Dr. Andrew Wilson, Scientific Director, Alpha-1 Foundation
The 2024 State of Alpha-1 Care & Pediatrics was presented by Dr. Michael Wells and Dr. Nitika Gupta at the 2024 Virtual Alpha-1 Education Day. Additionally, an introduction was presented by Erin Carr, Alpha Mom, Parents of Alpha-1 Kids (PAK), Alpha-1 Support Group Leader.
Introduction:
Erin Carr, Alpha Mom, Parents of Alpha-1 Kids (PAK),
Alpha-1 Support Group Leader
Presentations:
State of Alpha-1 Care – Dr. Mike Wells
State of Alpha-1 Pediatrics – Dr. Nitika Gupta
“Alpha-1 Foundation Research Registry and Alpha-1 Biomarker Consortium-Why You Should
Participate” presented by Dr. Jeanine D’Armiento at the 2023 Denver Alpha-1 Education Day.
Jeanine D’Armiento, MD
Denver Alpha-1 Education Day
August 5th, 2023
“Research Panel: Alpha-1 Clinical Trials & Drug Development – European Landscape” presented by a panel of physicians at the 2023 Alpha-1 Global 5th Research Conference.
Gerry McElvaney, MD
Pavel Strnad, MD
Alice Turner, MBChB, PhD
David Parr, MD, FRCP
Marc Miravitlles, MD FERS
Joanna Chorostowska, MD, PhD, DSc
2023 Alpha-1 Global 5th Research Conference
April 14, 2023