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Alpha-1 Coded Testing Study

ACT Study Brochure

Free, Confidential Testing

Free and confidential testing for Alpha-1 is available through the Alpha-1 Coded Testing Study.

This research study, directed by Charlie Strange, MD, at the Medical University of South Carolina, examines people’s thoughts and feelings about the risks and benefits associated with learning genetic information. In addition, correlations between genes and disease are being studied. The test is a finger stick you can do at home, and the results are mailed to your home.

To receive a testing kit, you must first sign an informed consent and fill out a research questionnaire. This may be done online by clicking the Get Tested Now! link below or through the mail. Per our ACT study protocol, each participant 18 years of age and above must sign their own consent and respond to their own questionnaire. Parents/guardians must fill out consents and questionnaires for each of their minor children. Spouses must also fill out their own forms. If no Internet access is available, you may request paper forms.

Get Tested Now!

You can contact the Alpha-1 Coded Testing Study toll-free at (877) 886-2383 or email alphaone@musc.edu.