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House committee unanimously passes 21st Century Cures FDA reform bill

House committee unanimously passes 21st Century Cures FDA reform bill
Thursday, May 21, 2015
The 21st Century Cures Act was unanimously approved by the House Energy and Commerce Committee on Thursday in a 51-0 vote. The goal of the nonpartisan legislation is to aid in modernizing and personalizing health care while encouraging greater innovation, supporting research and streamlining the system to deliver better, faster cures to more patients. "This historic day marks a big...
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TAP partner Alnylam files application in U.K. for clinical trial on treatment for Alpha-1 liver disease

Monday, May 18, 2015
Alnylam Pharmaceuticals announced Sunday that it has filed a Clinical Trial Application (CTA) with the U.K. Medicines and Healthcare products Regulatory Agency (MHRA) to initiate a Phase 1/2 clinical trial with ALN-AAT, an injectable RNAi...
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Vote on NHLBI forum question to highlight Alpha-1, COPD research issues

Friday, May 15, 2015
The Alpha-1 Foundation has submitted a question to the National Institutes of Health's National Heart, Lung and Blood Institute (NHLBI) Strategic Visioning Forum: Do Alpha-1 Antitrypsin Deficiency and Cystic Fibrosis Inform COPD? Have we been...
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Foundation awards record $1.8 million to 2015 research grant recipients at ATS reception May 18

Thursday, May 14, 2015
The Alpha-1 Foundation announced its 2015 grant awardees on Monday, May 18, during a reception at the American Thoracic Society (ATS) International Conference in Denver. “For the first time in the program’s history, the Foundation...
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HHS lifts ban on organ donors with HIV

Wednesday, May 13, 2015
People with HIV will no longer be prohibited from donating organs in the U.S.  The Department of Health and Human Services on Friday lifted a regulatory hurdle that has prevented use of organs from infected patients in research...
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8th annual George Washington Bridge Walk draws 100 walkers, raises $25,000

Tuesday, May 12, 2015
It was a banner weekend. Just nine or so hours after the Alpha-1 Foundation’s annual Celebration of Life event in Miami Beach, a little farther north — about 1,200 miles farther — Alphas, friends and family gathered on May 2 for...
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NIH GRADS study seeking MZ, ZZ participants; hear discussion May 18 at ATS conference

Monday, May 11, 2015
The Genomic Research in Alpha-1 Antitrypsin Deficiency and Sarcoidosis (GRADS) program will be showcased during a session at the American Thoracic Society (ATS) 2015 International Conference, May 15-20 in Denver. The program, at 12:15 p.m....
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Meet and talk with Alpha-1 experts at patient-family forum May 16 during ATS conference in Denver

Monday, May 11, 2015
The Alpha-1 Foundation, a member of the American Thoracic Society Public Advisory Roundtable (ATS PAR), will participate in the Meet-the-Experts patient-family forum during ATS 2015 International Conference, May 15-20 in...
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Celebration of Life, marking Foundation's 20th anniversary, "a perfect day"

Monday, May 11, 2015
As Alpha-1 Foundation President John Walsh thanked friends, family, industry partners, sponsors and colleagues for their support May 1 at the 15th annual Celebration of Life, Board Chairman Gordon Cadwgan slipped on his suit jacket to help present...
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Medicare, Medicaid mark 50th anniversary

Monday, May 11, 2015
This year marks the 50th anniversary of Medicare and Medicaid. President Lyndon Johnson signed both bills into law on July 30, 1965. On that day, an 81-year-old Missourian proudly accepted the nation's first Medicare card. He was former...
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Arrowhead announces good initial safety results in study of potential Alpha-1 liver disease drug

Tuesday, May 5, 2015
Arrowhead Research Corporation, a biopharmaceutical company developing targeted RNAi therapeutics, on Tuesday announced that it completed dosing healthy volunteers and will begin dosing patients in an ongoing phase 1 study of ARC-AAT, the...
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20 years: Salute to support groups, caregivers

Monday, May 4, 2015
The Alpha-1 Foundation kicked off its 20th anniversary celebration on February 3. Each month throughout this year, we will highlight groups and people who have played significant roles in the Foundation’s growth and...
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Listen to webinar on May 18 and celebrate physical activity — for everybody

Monday, May 4, 2015
The Association of University Centers on Disability (AUCD), the National Center on Health, Physical Activity, and Disability (NCHPAD) and Special Olympics are offering a free webinar, "Physical  Activity is for Everybody,” to celebrate...
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