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Clinical Resource Center doctor conducts Alpha-1 research in Israel

Clinical Resource Center doctor conducts Alpha-1 research in Israel
Friday, August 26, 2016
Humam Farah, MD, an Alpha-1 Clinical Resource Center (CRC) doctor based in Hannibal, Missouri, recently traveled to Tel Aviv, Israel as part of an ongoing research program that seeks to cure Alpha-1. Humam Farah, MD, chats with a patient at Hannibal Clinic. Farah has partnered with biopharmaceutical company Kamada, which is based in Israel, to create an Alpha-1 testing program. Kamada...

“Prairie Walk” to raise awareness of Alpha-1 and funding for research

Thursday, August 25, 2016
Soon after Jim Keith was diagnosed with Alpha-1 lung disease last year, he entered a program of exercise and education designed to help him improve his physical condition. The Historic Corron Farm will be the site of the "Prairie Walk for the...

Denver Walk raises nearly $13,000 to fight Alpha-1, still climbing toward goal of $15,000

Tuesday, August 23, 2016
An event that heightened awareness of Alpha-1 and raised money to help find a cure brought more than 75 people together under a beautiful, clear-blue sky framed by a backdrop of picturesque mountains. More than 75 people joined the Step...

ATS editorial warns against unregulated stem cell “treatments”

Monday, August 22, 2016
The Annals of the ATS, a publication of the American Thoracic Society, has published an editorial that warns against the use of unregulated, expensive stem cell remedies to treat severe respiratory diseases. The editorial, written by Laertis...

CRD Associates recognized for taking on “good causes” like Alpha-1

Thursday, August 18, 2016
CRD Associates, a Washington team of federal policy advisors that is working with the Alpha-1 Foundation to lobby government officials for better forms of treatment for Alphas, was highlighted in the National Institute for Lobbying and...

UMass gets 5-year, $11 million research grant for Alpha-1 gene therapy

Thursday, August 11, 2016
The National Heart, Lung, and Blood Institute (NHLBI) has awarded an $11 million, five-year grant to the University of Massachusetts Medical School to study new approaches to Alpha-1 gene therapy. Members of the UMass program project grant...

Obamacare appears to be making people healthier, study says

Tuesday, August 9, 2016
A new study published in the Journal of the American Medical Association (JAMA) suggests that the Affordable Care Act, also known as Obamacare, is making people healthier. A Kentucky woman receives treatment from her doctor The study, published...

Education Day, then Step Forward for Alpha-1 walk in Colorado this weekend

Monday, August 1, 2016
Learn more about Alpha-1, take a walk in the park, and get a free scoop of ice cream during a weekend packed with learning, exercise and fun in Colorado. Robert Sandhaus, MD, addresses Alphas during a 2014 support group picnic at his home,...

World Trade Center Health Program adds COPD to list of covered conditions

Thursday, July 28, 2016
The World Trade Center Health Program has added chronic obstructive pulmonary disease (COPD) to the list of covered conditions. The program provides medical monitoring and treatment to emergency responders and others who gave assistance following...

Alpha who was given dire prognosis gets successful lung transplant

Thursday, July 28, 2016
A Utah Alpha got a new lease on life after receiving a double lung transplant last weekend. Steve Bailey and his wife, Merity Steve Bailey of Lehi, Utah, was recuperating at University of Utah Hospital in Salt Lake City. “The...

Clinical Practice Guidelines published to help physicians identify and treat Alpha-1 Antitrypsin Deficiency in adults

Wednesday, July 20, 2016
The Journal of the COPD Foundation has published new clinical recommendations designed to guide doctors and other healthcare providers on how to properly diagnose and treat Alpha-1 Antitrypsin Deficiency (Alpha-1) in adults. Robert Sandhaus,...

PPTA urges continued plasma protein donation in the wake of Zika virus warnings

Friday, July 15, 2016
The Plasma Protein Therapeutics Association (PPTA) is encouraging agencies that collect plasma protein products to continue receiving donations, despite concerns about the spread of Zika infections in two Florida counties. The U.S. Food and...

Alpha-1 Foundation leaders go to The White House to advocate better forms of detection and treatment for Alphas

Thursday, July 14, 2016
WASHINGTON – Alpha-1 Foundation representatives traveled to The White House this week to advocate better forms of detection and treatment for Alpha-1 Antitrypsin Deficiency (Alpha-1) under President Barack Obama’s Precision Medicine...

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