Menu

Top Stories

8-year-old raises money in school to fight Alpha-1

8-year-old raises money in school to fight Alpha-1
Monday, May 23, 2016
Lucas Johnson surprised his mother when he came home from school one day and said, “Mom, I did a presentation on Alpha-1.” Lucas Johnson The 8-year-old liver-affected Alpha had decided to research his condition in school. Then he shared what he found with his classmates, including the fact that Alpha-1 affects at least 100,000 people in the U.S. and that it is genetically passed...
Divider

Foundation awards record $1.9 million to 14 grant recipients

Tuesday, May 17, 2016
The Alpha-1 Foundation announced its 2016 grant awardees on Monday, May 16 during a dinner reception at the American Thoracic Society (ATS) International Conference in San Francisco. The 14 grant recipients will receive a record total of $1.9...
Divider

Doctor donates liver to her son with Alpha-1

Monday, May 16, 2016
Sammy was born small and had a hard time gaining weight. When he was 2 months old we learned he had a rare condition, Alpha-1 Antitrypsin Deficiency. This condition, inherited from both sides of our family, significantly impaired Sammy’s...
Divider

AlphaNet clinical nurse manager in the spotlight for National Nurses Week

Thursday, May 12, 2016
Teresa Kitchen was mixing Terry Young’s augmentation infusion when he got the call: His new lungs had arrived, and he needed to rush over to the hospital for his transplant. Teresa Kitchen Barnes Jewish Hospital in St. Louis, MO was right...
Divider

16th Annual Celebration of Life an evening of cocktails, a day of golf to fight Alpha-1

Wednesday, May 11, 2016
The Alpha-1 Foundation welcomed friends, family, physicians, researchers and industry partners to the 16th annual Celebration of Life, a two-day event that began with an evening of cocktails and dinner under the stars on May 1, and concluded with...
Divider

COPD Foundation announces new leadership; Grace Anne Dorney Koppel named President and Craig Kephart becomes CEO

Monday, May 9, 2016
The COPD Foundation, the only U.S. healthcare not-for-profit solely dedicated to preventing and curing chronic obstructive pulmonary disease (COPD) while working to improve therapies, today announced that Grace Anne Dorney Koppel has been named...
Divider

Douglas C. Bruscino, who dedicated his life to educating others about Alpha-1, passes away

Monday, May 9, 2016
Douglas Charles Bruscino of Royal Palm Beach, FL, a voice for Alphas who sought to educate people about his condition – including those in the hospital who treated him – passed away on Tuesday, May 3, 2016. He was 49. Douglas and Lily...
Divider

PSI now encrypting emails containing private health information to maintain confidentiality

Friday, May 6, 2016
Patient Services, Inc. (PSI) has begun encrypting all emails containing private health information between patients and PSI. PSI is a not-for-profit organization that helps people living with chronic conditions – including many Alphas...
Divider

TAP chief discusses research at gene and cell therapy conference

Friday, May 6, 2016
Jean-Marc Quach, executive director of The Alpha-1 Project (TAP), on Wednesday discussed the research efforts and infrastructure that the Alpha-1 Foundation has built to advance both basic and translational research. Jean-Marc...
Divider

Athletes grind into shape ahead of Escape to the Cape

Thursday, May 5, 2016
Thomas Pease is literally fighting an uphill battle against Alpha-1. Thomas Pease, right, with his father He will ride his bicycle up and down a hill in Worthington, MA until he has climbed the equivalent of Mt. Everest – all 29,029 feet,...
Divider

House Republicans win battle In major legal challenge to Obamacare

Thursday, May 5, 2016
The Affordable Care Act could be headed for another major legal showdown after a federal judge on Thursday handed a victory to House Republicans seeking to block subsidies for millions of low-income people. John Boehner Affordable Care Act...
Divider

Karen Young, sister of late AlphaNet General Manager Terry Young, passes away

Wednesday, May 4, 2016
Karen Marie Young, sister of the late AlphaNet General Manager Terry Young, passed away on Wednesday, May 4, 2016. She was 69. Karen Marie Young Born on Oct. 5, 1946 in West Palm Beach, FL, she spent her formative years in Orlando and Houston....
Divider

Alpha-1 Foundation names Henry Moehring President and CEO; Walsh becomes Founder and Chief Visionary Officer

Tuesday, May 3, 2016
Henry Moehring has been named President and CEO of the Alpha-1 Foundation. John Walsh, who co-founded the Foundation in 1995 and has been President and CEO ever since, will take the new title of Founder and Chief Visionary Officer. Walsh was...
Divider
12345678910Last

Article Search

Enter keywords in text box and click Search button for results.

Archive