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Clinical Practice Guidelines published to help physicians identify and treat Alpha-1 Antitrypsin Deficiency in adults

Clinical Practice Guidelines published to help physicians identify and treat Alpha-1 Antitrypsin Deficiency in adults
Wednesday, July 20, 2016
The Journal of the COPD Foundation has published new clinical recommendations, endorsed by the Alpha-1 Foundation Medical and Scientific Advisory Committee, designed to guide doctors and other healthcare providers on how to properly diagnose and treat Alpha-1 Antitrypsin Deficiency (Alpha-1) in adults. Robert Sandhaus, MD The Clinical Practice Guidelines, based on the latest evidence and...
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Alpha-1 Foundation leaders go to The White House to advocate better forms of detection and treatment for Alphas

Thursday, July 14, 2016
WASHINGTON – Alpha-1 Foundation representatives traveled to The White House this week to advocate better forms of detection and treatment for Alpha-1 Antitrypsin Deficiency (Alpha-1) under President Barack Obama’s Precision Medicine...
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New targeted gene therapy could lead to improved treatments for Alphas

Monday, July 11, 2016
Researchers at Boston University are examining whether delivering gene therapy directly to the lungs of mice could improve treatment for Alphas. Andrew Wilson, MD Current therapies add normal alpha-1 antitrypsin (AAT) protein into the...
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Precision medicine may speed development of Alpha-1 treatments

Friday, July 8, 2016
The White House this week announced measures aimed at advancing President Barack Obama's Precision Medicine Initiative, including plans to speed the development of tests used to identify genetic mutations and guide medical treatment. The...
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New Clinical Resource Centers expand treatment and support for Alphas

Thursday, July 7, 2016
The 72-year-old woman realized that her old smoking habit was not the only reason for her breathing problems. She had just been diagnosed with a genetic cause, too. Donald A. Mahler, MD, FCCP “She had felt so guilty about having...
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Apple to push for organ donations through iPhones

Wednesday, July 6, 2016
Apple will give users the ability to sign up as organ donors on their iPhones as part of its upcoming iOS 10 update. Apple announced Tuesday it is partnering with Donate Life America to include a button on its Health app that will allow iPhone...
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Peg Iverson honored with Peter Smith Achievement Award at Alpha-1 awards and recognition night

Tuesday, June 28, 2016
Peg Iverson, an AlphaNet Coordinator who is active in Iowa Alpha-1 support groups, a volunteer for the American Lung Association and chairs the Iowa "Get the Scoop on Alpha-1" fundraiser for the Foundation's research programs, among many other...
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New Foundation president and CEO tells about his passion for Alpha-1: "You need to be able to tell your story."

Sunday, June 26, 2016
MIAMI, Florida -- Henry Moehring, new president and CEO of the Alpha-1 Foundation, presided over the 25th and second largest National Education Conference of the Alpha-1 community since its inception, he said in his Foundation update report on...
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"Helping ordinary people to do extraordinary things"

Friday, June 24, 2016
MIAMI, Florida -- More than 600 Alphas, caregivers, family members and supporters attended the opening day of the 25th annual National Education Conference of the Alpha-1 community Friday. They heard experts talk about the latest clinical trials...
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Building Friends for a Cure raises $745,000, aims for a million

Friday, June 24, 2016
MIAMI, Florida -- Gordon Cadwgan, Alpha-1 Foundation Board chair, and Lucas Johnson, an Alpha-1 kid, told the Starfish Story, about helping to save one beach-stranded starfish at a time, to make the point that "Regardless of how insignificant it...
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Air pollution to kill millions more without energy policy change, IEA says

Friday, June 24, 2016
Premature deaths from air pollution will continue to rise unless changes are made to the way the world uses and produces energy, the International Energy Agency said on Monday. A woman wearing a protective mask makes her way in heavily...
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Henry Moehring, new Alpha-1 Foundation President and CEO, is 'giving back' to the community

Tuesday, June 21, 2016
When Henry Moehring became the Alpha-1 Foundation’s president and CEO in late April, he had a long history of volunteer involvement with the Alpha-1 community. Henry Moehring  He had been vice chairman of the Foundation Board...
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Shire and Kamada announce FDA approval of expanded label for self-infusion of Glassia

Tuesday, June 14, 2016
Shire and Kamada announced today that the U.S. Food and Drug Administration (FDA) has authorized an expanded label for the Alpha-1 augmentation therapy marketed as Glassia. The new label will indicate that the product is approved for Alphas to...
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