Alpha-1 National Conference
The Alpha-1 National Conference is the largest annual gathering of Alphas, their families, leading healthcare professionals, and industry in the world. It is a four-day event with educational programs given by national experts and leaders in the Alpha-1 field. The conference provides a unique opportunity to increase your understanding of Alpha-1 and network with patients diagnosed with Alpha-1, their families, industry, and healthcare professionals such as respiratory therapists, nurse practitioners, physicians, and nurses.
The 2022 Hybrid Alpha-1 National Conference will take place June 8-11, 2022.
About the 2022 Hybrid Alpha-1 National Conference
The Conference features a virtual agenda that will be available to all attendees on the interactive virtual platform from Wednesday, June 8th to Saturday, June 11th. The conference includes:
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Fun interactive events,
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Multiple Keynote presentations,
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Alpha-1 education including several timely topics of interest and patient testimonials,
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Multiple open forum Q&A breakout sessions with the speakers and Alphas,
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And dedicated chat times with the exhibitors.
Additionally, several Alpha-1 educational and research presentations, including Alpha-1 101 Lung and Liver, will be available one week prior to the Conference for viewing on-demand. Presentations & resources from the Conference will be available on-demand for 30 days following the conference closing.
Three in-person events will take place with local Alpha-1 Clinical Resource Centers (CRCs) & Support Groups in Miami, New York City, and Portland. These in-person events will be short one-day seminars where local attendees can meet with local Alpha-1 experts, network with other Alphas, and meet their local CRC and Support Group Leaders.
The health and well-being of the Alpha-1 community remain our top priority. Due to strict adherence to COVID-19 protocols, in-person events will have a limited number of participants.
If you are local to one of these cities and would like more information, please email Alexis Ojeda at aartiles@alpha1.org.
Conference Registration Package
Register by May 27th to receive the official “The Time is Now” National Conference Registration Package* in the mail! The first 1,500 conference registrants will receive branded Alpha-1 National Conference materials and fun conference giveaways.
*The conference welcome package is limited to registrants in the United States
Industry and Exhibitors
All persons who are employed by an industry company or consultants must register to attend as an exhibitor, even if they will not be participating in an exhibit booth, including MSLs and healthcare providers. For any questions or to register as an exhibitor, please contact Angela McBride at amcbride@alpha1.org
Read More About Hybrid Events
The Alpha-1 Foundation is excited to launch hybrid events this summer. A hybrid event has both an in-person and virtual component, creating a single event experience for all attendees. An on-demand component will be available, featuring an online experience with educational content available to watch prior to and after the live event. This hybrid model creates an environment where the Alpha-1 community can decide their own participation moving forward. These events provide both in-person and virtual attendees access to Alpha-1 education, experts, and peers.
The health and well-being of the Alpha-1 community are our top priority. Due to strict adherence to COVID-19 protocols, the in-person events will have a limited number of participants. View our COVID event grid here.
Alpha Hours
National Conference Marketplace
Alpha-1 Silent Auction
We need your help! We are collecting silent auction items for the upcoming virtual Silent Auction to raise funds to help find a cure for Alpha-1! The silent auction is taking place in conjunction with the 2022 Hybrid National Conference from June 1- June 12, 2022 on the virtual online mobile bidding platform.
Contact local businesses or ask friends and family to donate items using our official auction solicitation letter by clicking here.
Great auction items include hotel stays, gift certificates, travel miles, gift baskets, art, and/or anything purple and easy to ship!* If you would like to donate an item, please complete an auction form and email to Linda Rodriguez.
Anyone can participate in donating and bidding in the auction! Registration is not required to bid or donate items.
*Please note all donors are responsible for getting the items to the winners.
National Conference Make a Difference Room
National Conference Alpha Angels
- 2021 Alpha-1 National Conference Highlights
- 2020 Alpha-1 National Conference Recap Video
- 2018 National Education Conference Highlights
- 2017 National Education Conference Highlights
- 2016 National Education Conference Highlights
- 2015 National Education Conference Highlights
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The Alpha-1 Foundation Launches the 2021 Virtual Alpha-1 National Conference
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DAY 1 Recap: 2021 Virtual Alpha-1 National Conference
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Day 2 Recap: 2021 Virtual Alpha-1 National Conference
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Day 3 Recap: 2021 Virtual Alpha-1 National Conference
The 2021 Emerging Therapies session was supported by:
Arrowhead | Dicerna | INHIBRX | Kamada | Mereo Biopharma
The 27th Annual National Education Conference will be streaming online
View the 2018 conference agenda as a pdf.
All of the 2018 conference presentations will be available to view online at your convenience by August 24th.
The Alpha-1 Foundation would like to thank all of the sponsors for participating in this year’s conference.
Thank you to our 2018 Platinum Sponsors:
- AlphaNet
- CSL Behring
- Grifols
- Shire
Thank you to our 2018 Gold Sponsor:
- Dohmen Life Science Services
Thank you to our 2018 Silver Sponsors:
- Accredo
- Coram
- Diplomat Specialty Infusion Group
Thank you to our 2018 Bronze Sponsors:
- Advanced Aeromedical
- Arrowhead Pharmaceuticals
- Adverum Biotechnologies
- Insmed
- Philips RespirTech
Thank you to our 2018 Non-profit Sponsors:
- COPD Foundation
- National Organization for Rare Disorders (NORD)
- Patient Services, Inc (PSI)
- Plasma Protein Therapeutics Association (PPTA)
- University of Florida Alpha-1 Antitrypsin Research Program
View the 2017 Conference Agenda as a PDF here.
All of the 2017 conference presentations are available to view online at your convenience.
Thank you to our 2017 Platinum Sponsors:
AlphaNet
CSL Behring
Grifols
Shire
Thank you to our 2017 Gold Sponsor:
Dohmen Life Science Services
Thank you to our 2017 Silver Sponsors:
Accredo
Coram
Diplomat
Thank you to our 2017 Bronze Sponsors:
Advanced Aeromedical
Arrowhead Pharmaceuticals
Thank you to our 2017 Non-profit Sponsors:
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc
Plasma Protein Therapeutics Association (PPTA)
View the 2016 Conference Agenda as a PDF here.
All of the 2016 conference presentations are available to view online at your convenience.
One of the highlights Friday afternoon was the Community Forum, which offered attendees an opportunity to meet with community leaders and discuss ways they can participate in shaping the future of Alpha-1. This was especially fitting with this year’s theme “Without YOU There Is No Solution.” Further weaving the theme throughout the weekend was the Foundation’s exhibit booth, which featured a quiz entitled “What is Your Alpha-1 Personality?” Over 40 percent of attendees took the quiz and were given one of four results: advocacy, fundraising, research or support. Take the Alpha-1 quiz and share your results with the Foundation on social media!
For the second year, the conference offered Meet the Experts, an opportunity for Alphas, their caregivers and families to have “15-minute conversations” with Alpha-1 Clinical Resource Center physicians and ask their questions face-to-face. Over 45 Alphas and their guests took advantage of this opportunity and met with six doctors and the Alpha-1 Genetic Counselor.
The Foundation took time over the weekend to honor the many contributions and achievements that members of the Alpha-1 community have made. Friday evening at the Building Friends for a Cure (BFC) awards, attendees heard the Starfish Story about helping to save one beach-stranded starfish at a time, to make the point that “regardless of how insignificant it may seem to the eyes of others, we can all make a difference.” Read about this year’s many creative and inspired fundraisers.
Presented jointly by the Foundation and AlphaNet, the Advancement of Research Award was given to Mark Brantly, MD on Saturday evening for his dedication and determination to finding a cure for Alpha-1. The Foundation presented six more honorees with awards including the Dennis Pollock Spirit of Advocacy Award and the Inspirational Award. Read more.
THANK YOU to our 2016 Presenting Sponsors:
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- AlphaNet
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- Baxalta
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- CSL Behring
- Grifols
Thank you to our 2016 Lead Sponsor:
Dohmen Life Science Services
Thank you to our 2016 Exhibitors:
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- Accredo
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- BioRx
- Coram
Thank you to our 2016 Partners, Exhibitors, Non-profit Partners, and Research Studies:
Adult Liver Study
Advanced Aeromedical
Arrowhead Pharmaceuticals, Inc.
COPD Foundation
Heritage Biologics
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
State of Florida Detection Program
University of Florida
Thank you to our 2015 Presenting Sponsors:
AlphaNet Baxalta CSL Behring Grifols
Thank you to our 2015 Lead Sponsor:
Dohmen Life Science Services
Thank you to our 2015 Exhibitors:
Accredo BioRx Coram
Thank you to our 2015 Partners, Exhibitors, Non-profit Partners, and Research Studies:
Advanced Aeromedical
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
University of Florida Clinical Trials
Alpha-1 Antitrypsin Deficiency Adult Clinical and Genetic Linkage Study
Arrowhead Research Corporation
