fbpx
Select Page

Alpha-1 National Conference

The Alpha-1 National Conference is the largest annual gathering of Alphas, their families, leading healthcare professionals, and industry in the world. It is a four-day event with educational programs given by national experts and leaders in the Alpha-1 field. The conference provides a unique opportunity to increase your understanding of Alpha-1 and network with patients diagnosed with Alpha-1, their families, industry, and healthcare professionals such as respiratory therapists, nurse practitioners, physicians, and nurses.

The 2022 Hybrid Alpha-1 National Conference will take place June 8-11, 2022.

About the 2022 Hybrid Alpha-1 National Conference

The Conference features a virtual agenda that will be available to all attendees on the interactive virtual platform from Wednesday, June 8th to Saturday, June 11th. The conference includes:

  • Fun interactive events,
  • Multiple Keynote presentations,
  • Alpha-1 education including several timely topics of interest and patient testimonials,
  • Multiple open forum Q&A breakout sessions with the speakers and Alphas,
  • And dedicated chat times with the exhibitors.

Additionally, several Alpha-1 educational and research presentations, including Alpha-1 101 Lung and Liver, will be available one week prior to the Conference for viewing on-demand. Presentations & resources from the Conference will be available on-demand for 30 days following the conference closing.

Three in-person events will take place with local Alpha-1 Clinical Resource Centers (CRCs) & Support Groups in Miami, New York City, and Portland. These in-person events will be short one-day seminars where local attendees can meet with local Alpha-1 experts, network with other Alphas, and meet their local CRC and Support Group Leaders.

The health and well-being of the Alpha-1 community remain our top priority. Due to strict adherence to COVID-19 protocols, in-person events will have a limited number of participants.

If you are local to one of these cities and would like more information, please email Alexis Ojeda at aartiles@alpha1.org.

Conference Registration Package

Register by May 27th to receive the official “The Time is Now” National Conference Registration Package* in the mail! The first 1,500 conference registrants will receive branded Alpha-1 National Conference materials and fun conference giveaways.

*The conference welcome package is limited to registrants in the United States

Industry and Exhibitors

All persons who are employed by an industry company or consultants must register to attend as an exhibitor, even if they will not be participating in an exhibit booth, including MSLs and healthcare providers. For any questions or to register as an exhibitor, please contact Angela McBride at amcbride@alpha1.org

Read More About Hybrid Events

The Alpha-1 Foundation is excited to launch hybrid events this summer. A hybrid event has both an in-person and virtual component, creating a single event experience for all attendees. An on-demand component will be available, featuring an online experience with educational content available to watch prior to and after the live event. This hybrid model creates an environment where the Alpha-1 community can decide their own participation moving forward. These events provide both in-person and virtual attendees access to Alpha-1 education, experts, and peers.

The health and well-being of the Alpha-1 community are our top priority. Due to strict adherence to COVID-19 protocols, the in-person events will have a limited number of participants. View our COVID event grid here.

We can’t wait to see you at the Alpha-1 community event of the year! If you have any additional questions, please contact Cathey Henderson at chenderson@alpha1.org.
Alpha Hours
Join the Alpha-1 Community for “Alpha Hours” leading up to the National Conference in June! Learn about conference speakers, fun activities, silent auction and raffle items, new Alpha-1 merchandise and more! Join the fun and learn how to get involved!
National Conference Marketplace
Get your Alpha-1 Merch! The Alpha-1 Foundation will be launching a revamped online merchandise store right in time for summer! Get your goodies by visiting the Marketplace during the National Conference.
Alpha-1 Silent Auction

We need your help! We are collecting silent auction items for the upcoming virtual Silent Auction to raise funds to help find a cure for Alpha-1! The silent auction is taking place in conjunction with the 2022 Hybrid National Conference from June 1- June 12, 2022 on the virtual online mobile bidding platform.

Contact local businesses or ask friends and family to donate items using our official auction solicitation letter by clicking here.

Great auction items include hotel stays, gift certificates, travel miles, gift baskets, art, and/or anything purple and easy to ship!* If you would like to donate an item, please complete an auction form and email to Linda Rodriguez.

Anyone can participate in donating and bidding in the auction! Registration is not required to bid or donate items.

 

*Please note all donors are responsible for getting the items to the winners.

National Conference Make a Difference Room
Visit the “Make a Difference Room” to learn about all the different and fun ways to get involved with the Alpha-1 Foundation. Learn about DIY fundraising, cycling events, scavenger hunts and the Virtual Walk! The A1F team is here to guide you every step of the way and to help find a cure for Alpha-1!
National Conference Alpha Angels
Join the Alpha-1 Community for the annual Memorial Service to remember all Alpha Angels. Please feel free to submit a picture and a few words or a 30 second video of your loved one to Linda Rodriguez at: lrodriguez@alpha1.org by June 1st to be included in the presentation.
Platinum Sponsors
Silver Sponsors
Past Alpha-1 National Conference Highlights
The 27th National Education Conference opens with a panel on the latest Alpha-1 findings

The 27th Annual National Education Conference will be streaming online

Margaret Anderson will deliver keynote speech at the Alpha-1 Annual National Education Conference in San Francisco

View the 2018 conference agenda as a pdf.

All of the 2018 conference presentations will be available to view online at your convenience by August 24th.

The Alpha-1 Foundation would like to thank all of the sponsors for participating in this year’s conference.

Thank you to our 2018 Platinum Sponsors:

  • AlphaNet
  • CSL Behring
  • Grifols
  • Shire

Thank you to our 2018 Gold Sponsor:

  • Dohmen Life Science Services

Thank you to our 2018 Silver Sponsors:

  • Accredo
  • Coram
  • Diplomat Specialty Infusion Group

Thank you to our 2018 Bronze Sponsors:

  • Advanced Aeromedical
  • Arrowhead Pharmaceuticals
  • Adverum Biotechnologies
  • Insmed
  • Philips RespirTech

Thank you to our 2018 Non-profit Sponsors:

  • COPD Foundation
  • National Organization for Rare Disorders (NORD)
  • Patient Services, Inc (PSI)
  • Plasma Protein Therapeutics Association (PPTA)
  • University of Florida Alpha-1 Antitrypsin Research Program
The Alpha-1 Foundation’s Annual National Education Conference is a unique opportunity for many newly diagnosed Alphas and their families to receive answers to their questions and meet others like them. The 26th annual conference in Chicago, IL was no exception. After final review, 652 attendees from 45 states and 5 countries gathered on June 24 – 26 to speak to leading experts on Alpha-1, network with peers, and get involved in the Alpha-1 community through local support groups, research, awareness activities and fundraising.

View the 2017 Conference Agenda as a PDF here.

All of the 2017 conference presentations are available to view online at your convenience.

Thank you to our 2017 Platinum Sponsors:
AlphaNet
CSL Behring
Grifols
Shire

Thank you to our 2017 Gold Sponsor:
Dohmen Life Science Services

Thank you to our 2017 Silver Sponsors:
Accredo
Coram
Diplomat

Thank you to our 2017 Bronze Sponsors:
Advanced Aeromedical
Arrowhead Pharmaceuticals

Thank you to our 2017 Non-profit Sponsors:
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc
Plasma Protein Therapeutics Association (PPTA)

The Alpha-1 Foundation’s Annual National Education Conference is a unique opportunity for many newly diagnosed Alphas and their families to receive answers to their questions and meet others like them. The 25th annual conference in Miami, FL was no exception. After final review, 610 attendees from 45 states and 5 countries gathered on June 24 – 26 to speak to leading experts on Alpha-1, network with peers, and get involved in the Alpha-1 community through local support groups, research, awareness activities and fundraising.

View the 2016 Conference Agenda as a PDF here.

All of the 2016 conference presentations are available to view online at your convenience.

One of the highlights Friday afternoon was the Community Forum, which offered attendees an opportunity to meet with community leaders and discuss ways they can participate in shaping the future of Alpha-1. This was especially fitting with this year’s theme “Without YOU There Is No Solution.” Further weaving the theme throughout the weekend was the Foundation’s exhibit booth, which featured a quiz entitled “What is Your Alpha-1 Personality?” Over 40 percent of attendees took the quiz and were given one of four results: advocacy, fundraising, research or support. Take the Alpha-1 quiz and share your results with the Foundation on social media!

Read more about “helping ordinary people do extraordinary things” and the rest of Friday’s conference program.

For the second year, the conference offered Meet the Experts, an opportunity for Alphas, their caregivers and families to have “15-minute conversations” with Alpha-1 Clinical Resource Center physicians and ask their questions face-to-face. Over 45 Alphas and their guests took advantage of this opportunity and met with six doctors and the Alpha-1 Genetic Counselor.

The Foundation took time over the weekend to honor the many contributions and achievements that members of the Alpha-1 community have made. Friday evening at the Building Friends for a Cure (BFC) awards, attendees heard the Starfish Story about helping to save one beach-stranded starfish at a time, to make the point that “regardless of how insignificant it may seem to the eyes of others, we can all make a difference.” Read about this year’s many creative and inspired fundraisers.

Presented jointly by the Foundation and AlphaNet, the Advancement of Research Award was given to Mark Brantly, MD on Saturday evening for his dedication and determination to finding a cure for Alpha-1. The Foundation presented six more honorees with awards including the Dennis Pollock Spirit of Advocacy Award and the Inspirational Award. Read more.

THANK YOU to our 2016 Presenting Sponsors:

    • AlphaNet

 

    • Baxalta

 

    • CSL Behring

 

  • Grifols

Thank you to our 2016 Lead Sponsor:

Dohmen Life Science Services

Thank you to our 2016 Exhibitors:

    • Accredo

 

    • BioRx

 

  • Coram

Thank you to our 2016 Partners, Exhibitors, Non-profit Partners, and Research Studies:

Adult Liver Study
Advanced Aeromedical
Arrowhead Pharmaceuticals, Inc.
COPD Foundation
Heritage Biologics
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
State of Florida Detection Program
University of Florida

View the full 2015 Conference Agenda here.

2015 Alpha-1 National Conference opens with inspirational Appalachian Trail story, meetings with experts and session on community engagement.

Building Friends for a Cure honors community fundraisers; BFC program has raised more than $5 million over 10 years.

Thank you to our 2015 Presenting Sponsors:

AlphaNet     Baxalta    CSL Behring     Grifols

 

Thank you to our 2015 Lead Sponsor:

Dohmen Life Science Services

 

Thank you to our 2015 Exhibitors:

Accredo      BioRx      Coram

 

Thank you to our 2015 Partners, Exhibitors, Non-profit Partners, and Research Studies:

Advanced Aeromedical
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
University of Florida Clinical Trials
Alpha-1 Antitrypsin Deficiency Adult Clinical and Genetic Linkage Study
Arrowhead Research Corporation

Accreditations

Alpha-1 Events Calendar

June 2022

S
M
T
W
T
F
S
29
30
31
1
2
3
4
Events for June

1st

Events for June

2nd

No Events
Events for June

3rd

No Events
Events for June

4th

No Events
5
6
7
8
9
10
11
Events for June

5th

No Events
Events for June

6th

No Events
Events for June

7th

No Events
Events for June

8th

Events for June

9th

Events for June

10th

Events for June

11th

12
13
14
15
16
17
18
Events for June

12th

No Events
Events for June

13th

No Events
Events for June

14th

No Events
Events for June

15th

No Events
Events for June

16th

No Events
Events for June

17th

No Events
Events for June

18th

No Events
19
20
21
22
23
24
25
Events for June

19th

No Events
Events for June

20th

No Events
Events for June

21st

No Events
Events for June

22nd

No Events
Events for June

23rd

No Events
Events for June

24th

No Events
Events for June

25th

No Events
26
27
28
29
30
1
2
Events for June

26th

No Events
Events for June

27th

No Events
Events for June

28th

No Events
Events for June

29th

No Events
Events for June

30th

No Events