Alpha-1 Association

July 2009

		06/19/2009 Kamada Submits BLA to FDA continued... 06/17/2009 CSL and Talecris terminate merger agreement continued... 06/17/2009 Talecris data shows that concentrated form of Prolastin is safe and tolerable; potentially cuts infusion times in half for patients with AAT deficienc continued... 06/17/2009 Talecris Responds to U.S. Federal Trade Commission Filing of Complaint to Challenge Proposed CSL Transaction continued...

The Alpha-1 Association is a member-based not-for-profit organization dedicated to identifying those affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy and to encourage participation in research. Alpha-1-Antitrypsin Deficiency (Alpha-1) is a genetic disorder that can cause liver and lung disease in children and adults.

Virtual Support Group Telecalls Join and participate in the Virtual Support Group Meetings to be held in June and July via telephone. To participate on the call, please dial: 1 (888) 550-5602 and enter 7924 4120. For quick access, go to https://www.spiderphone.com/79244120 (This link will help connect both your browser and telephone to the call)All calls will be held at 9:00pm EST at the meeting dates below. July 17 Pre and Post Transplant Support Group Take Action Today Get involved in Advocacy by calling your legislator regarding 2 current ActionAlerts: Ending Medicare Disabiltiy Waiting Period and Lifetime Insurance Caps. For more information, please click here. Airline Oxygen All airlines that fly take off or land in the United States are now required to allow DOT-approved individually-owned Portable Oxygen Concentrators (POCs) to be carried on and used aboard the plane. There is a new Airline Oxygen Council of America (AOCA) website that explains the rules and names the approved concentrators. The website also explains how to report an airline that does not comply with the rules. The COPD Foundation's COPD Help Line has agreed to accept and forward any such problems.		July 7 2009, 9:00pm Transplant Support Group Telecall more... July 11 2009, 1:00pm Dakotaland Alpha-1 Support Group Meeting more... July 25 2009, 11:00am West Penn Z's Support Group Meeting more... August 1 2009, 11:00am Support Group Meeting - Springfield, MO more... August 8 2009, 9:00am Denver, CO Alpha-1 Education Day more...