Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic (inherited) condition – it is passed from parents to their children through their genes. Alpha-1 may result in serious lung disease in adults and/or liver disease at any age.
The FDA is asking Alphas and their supporters to post comments about Alpha-1 on its website before Nov. 30.
A 5K walk at a park in Indiana raised $21,000 for Alpha-1 research.
The COPD Foundation and ViiMed announced a new interactive program designed to provide better care solutions for people with COPD.
Alphas and caregivers packed a public meeting held by the FDA to discuss what it's like to live with Alpha-1, and the need for new treatments.
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